I'm in the video and this is what I wrote for a press release re why I chose to be in it:
Many people believe that patients with CFS just want the "benefits" that come with being sick. For me, those so-called benefits include: isolation and loneliness from being too ill to be around people; living on an income that does not even cover my most basic needs; barely managing to take care of myself; and never feeling well enough to do any of the many activities I love. In being a part of this video, it is my hope that people watching will realize that what "everybody knows about me" (and about others with CFS) is far removed from the reality of life with this devastating illness.
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I'm in the video and this is what I wrote for a press release re why I chose to be in it:
Many people believe that patients with CFS just want the "benefits" that come with being sick. For me, those so-called benefits include: isolation and loneliness from being too ill to be around people; living on an income that does not even cover my most basic needs; barely managing to take care of myself; and never feeling well enough to do any of the many activities I love. In being a part of this video, it is my hope that people watching will realize that what "everybody knows about me" (and about others with CFS) is far removed from the reality of life with this devastating illness.
May 16, 2010 - 8:48pmThis Comment
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