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Anonymous

Just got diagnosed with PR today. I couldn't stop the tears when the doctor told me it could last 8-12 weeks and there was nothing i could do. My herald patch showed up about 3-4 weeks ago and I didn't know what it could be. It looked like someone took a car cigarette lighter and held it to the back of my shoulder. So i kind of ignored it for a week, when it got darker, i thought maybe I should make an appt with my doctor but the earliest she could see me was a two week wait. Well, a week ago, within a few days the rash spread all over my neck and shoulders, and down in my cleavage and under my breasts. It's the itchiest, most uncomfortable thing I've ever had next to chicken pox when I was 12. And even those only lasted a month tops!

Of course, like everyone when they hear they've got PR, i've been combing the internet looking for something i can do. I work in a college and my co workers and students are looking at me like i'm some kind of leper! I just got engaged and I've been all happy and excited starting to plan a wedding and now i'm struggling with this overwhelming depression at the thought of having this for the whole summer. I feel so gross. I told my fiance I just don't think I can have sex when I feel like this and that was before i knew what it was and how long it could last! Reading all your experiences has helped me feel not so alone, and gives me hope that it will go away. But being as it just started, i'm so sad at the thought that i have so long to go...

June 14, 2012 - 4:42pm

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