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Expert HERWriter Guide Blogger

Hi Jacki - Quite honestly, I doubt very much that your surgeon was trying to scare you. It's her legal and moral responsibility to give you the information that you need, and she was giving you her professional opinion.

When you go online and look at information about cancer survival you will often see referrals to a "five-year" survival rate because that's a standard often used as a measurement in clinical trials and therefore reported in journals.

I'm glad that you found the information helpful. There is another resource that may also be of interest to you since information on uterine cancer is hard to find. The American Society of Clinical Oncology offers a lot of information on both their professional website and a separate one for consumers. The clinical site has the most current treatment data, including clinical trial information. http://www.asco.org/

The patient site http://www.cancer.net/ has a wealth of information such as more precise information on cancers http://www.cancer.net/patient/Cancer+Types/Uterine+Cancer
and coping http://www.cancer.net/patient/Coping
and end of life care http://www.cancer.net/patient/Coping/End-of-Life+Care

The end of life section has good information on the legal steps you need to take to ensure that your wishes will be met.

I'm glad you're going back to talk to your surgeon again. If you don't mind a suggestion, I would prepare questions in advance to be sure you get the information you want and I would also take along a friend to take notes. It can be very, very hard to absorb what's being said while also thinking ahead about what you want to ask, and having a friend along to help out can make a major difference.

The Gynecologic Cancer Foundation, a non-profit group, operates a Women's Cancer Network support group that may interest you. http://www.wcn.org/

I hope you're not overloaded now, but I know that one piece of information often leads to wanting more information and I wanted you to have some good resources for your journey. I hope you'll check in from time to time and let us know how you're doing.

Take care, Pat

June 9, 2010 - 6:14pm

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