Hi, previous symptoms beforre getting pregnant were frequency, urgency + pain. Also the mental effects were awful - lack of understanding + isolation. Whenever I had a flare up it used to come over all of a sudden + it would make me so anxious - it was just dreadful. I was at one hospital that I was not happy with then I transferred all my care to another one - not sure if I can mention the name but it is specifically for women + it is in my home city - I live in Liverpool!!! The urology team there are second to none - absolutely fantastic + my nurse specialises in IC, in fact IC is her baby!!! I will be going back on to Elmiron which aren't licensed in the UK so I have to get them on a nmaed patient basis from USA. They take a few months to work but they basically help build up the bladder lining. They didn't cure me but they did help a great deal. I began having Cystistat bladder instillations last year - I was having them weekly at first then went to monthly treatments. The nurse used to insert the solution into my bladder via a catheter + I had to turn around - a bit liki a chicken on a skewer!!! to make sure it covered my bladder. I found it very soothing. I had to hold it for at least 30 mins + it helped coat the bladder lining. I feel that having a good uro team is half the battle - I cannot praise them enough. For years I was pushed from pillar to post by different hospitals + given all sorts of meds + the doctors there didn't know what was wrong + I felt brushed aside. I still have to watch what I eat - I can only drink water + have had to cut out citrus fruits/ spicy food + a few other bits but that is a small sacrifice to pay!
I am feeling quite positive today as 5 weeks today Iwill be having my baby!!! Excited but nervous!!! :) xxxx
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Hi, previous symptoms beforre getting pregnant were frequency, urgency + pain. Also the mental effects were awful - lack of understanding + isolation. Whenever I had a flare up it used to come over all of a sudden + it would make me so anxious - it was just dreadful. I was at one hospital that I was not happy with then I transferred all my care to another one - not sure if I can mention the name but it is specifically for women + it is in my home city - I live in Liverpool!!! The urology team there are second to none - absolutely fantastic + my nurse specialises in IC, in fact IC is her baby!!! I will be going back on to Elmiron which aren't licensed in the UK so I have to get them on a nmaed patient basis from USA. They take a few months to work but they basically help build up the bladder lining. They didn't cure me but they did help a great deal. I began having Cystistat bladder instillations last year - I was having them weekly at first then went to monthly treatments. The nurse used to insert the solution into my bladder via a catheter + I had to turn around - a bit liki a chicken on a skewer!!! to make sure it covered my bladder. I found it very soothing. I had to hold it for at least 30 mins + it helped coat the bladder lining. I feel that having a good uro team is half the battle - I cannot praise them enough. For years I was pushed from pillar to post by different hospitals + given all sorts of meds + the doctors there didn't know what was wrong + I felt brushed aside. I still have to watch what I eat - I can only drink water + have had to cut out citrus fruits/ spicy food + a few other bits but that is a small sacrifice to pay!
July 12, 2010 - 2:01amI am feeling quite positive today as 5 weeks today Iwill be having my baby!!! Excited but nervous!!! :) xxxx
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