Thank you very much Diane and Pat. I am still reeling around in my mind. Tomorrow I see Dr Gee for the second time and 'have it out' with him over the support group at the hospital he works at.
I have checked out all the links that I have been sent, some places I already knew about, and had heard of, some I did not. Some no longer work, or when I get in, the people are no longer there - email addresses that do not connect any more. I have notified the sites where possible that their info is incorrect - that is the Web, eh!
I am now awaiting replies from some places, and will see what transpires.
I really appreciate the time and effort you have gone to - thank you so much.