Zebra23 - Thank you for sharing your story with us. Carcinoid cancer, like many rare cancers, does not get a lot of public attention and your story is going to help alert others about this condition.
You may already know about this, but in case not, I wanted to make you aware of the Carcinoid Cancer Foundation which provides helpful information and resources for patients and caregivers. Their website is at http://www.carcinoid.org/
Please let us know if there's a way we can assist you, we hope to hear more from you and learn more about your journey.
Take care, Pat