Hi Zebra23 - How wonderful to know that you've become an advocate for yourself and others! You've done a lot in a very short time, and your passion comes through in your words. I'm so glad you found our site and you're bringing this information to others.
I too have a rare form of cancer - chronic myelogenous leukemia - that most people, including many doctors, have never heard of. I've found that the rare cancers have a lot of common concerns that stem from getting less attention and less funding than the more common cancers. I've found a literal world of support through global support groups involving patients from around the globe who share my disease. When it comes right down to it, we are all humans and all need support, no matter what sex, age, race, color, country or language. I'm looking forward to hearing more from you, and about you.Thanks for all that you do to help spread the word about carcinoid cancer!