I have had vulvodynia for years and years and years. I had so many issues and finally was referred to a specialist in Milwaukee, WI, 100 mi from where we live. It was my physical savior. She knew right away that I had Lichen Planus of the vulva and vagina. A biopsy confirmed it. I was treated for a year carefully and conservatively but no luck. So she did a vulvarvestibulectomy on me. Removed the Barthelon Glands most women don't know they had. I had 4 inch tumors in some and I didn't even know it. I was on bed rest for 2 wks straight, had to have help for everything. It was a 3 month recovery. She was the most awesome Dr. ever. I have residual pain left from it going untreated for so many years and Dr's not knowing what was wrong with me. I know how to treat myself now but it's affected all areas of my vulva. It's been difficult on intimacy and been married 42 years to a wonderful guy. He's very kind to me. So it could be worse. I googled using essential oils for it as I'm getting into EO's and wondered about using some for that but coconut oil would be wonderful. Probably better than the steroid cream I use once in awhile with Estrace cream. Better days ahead ladies. Just hang in there. Soaks in the tub without any kind of soap is good also for some relief. Good luck.
Comment Reply
I have had vulvodynia for years and years and years. I had so many issues and finally was referred to a specialist in Milwaukee, WI, 100 mi from where we live. It was my physical savior. She knew right away that I had Lichen Planus of the vulva and vagina. A biopsy confirmed it. I was treated for a year carefully and conservatively but no luck. So she did a vulvarvestibulectomy on me. Removed the Barthelon Glands most women don't know they had. I had 4 inch tumors in some and I didn't even know it. I was on bed rest for 2 wks straight, had to have help for everything. It was a 3 month recovery. She was the most awesome Dr. ever. I have residual pain left from it going untreated for so many years and Dr's not knowing what was wrong with me. I know how to treat myself now but it's affected all areas of my vulva. It's been difficult on intimacy and been married 42 years to a wonderful guy. He's very kind to me. So it could be worse. I googled using essential oils for it as I'm getting into EO's and wondered about using some for that but coconut oil would be wonderful. Probably better than the steroid cream I use once in awhile with Estrace cream. Better days ahead ladies. Just hang in there. Soaks in the tub without any kind of soap is good also for some relief. Good luck.
February 16, 2015 - 10:54amThis Comment
Reply