Thank you for sharing this and congrats on the book. I'm certain it will help others.
It is unfortunate that so many in the health care professions, docs in particular, dismiss their patient's experiences and don't listen. It has happened to me as well. That's why it is so important to advocate for yourself. You know your body best, and you know when something is really wrong. If you have a doctor who won't listen, find a new one. As you have found, your life may depend on it.
Best of luck with your book!