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I wish I'd found this thread a year and a half ago. I received my flu shot on October 6, 2010 and my life changed, so far, permanently. I've never experienced such excruciating and debilitating pain in my life. After struggling for 4 months and hearing everything from doctors that had no idea what to do, I finally went to a neurologist in February 2011 who had experience with my symptoms. I was diagnosed with Parsonage Turner Syndrome (PTS). There is no cure and only experimental treatment. I'm on some unbelievably strong meds and have been for over a year now. I can report significant improvement; however, I would have to say that my pain level has been reduced from "ready to check out" to "this really hurts". I hope to continue my slow recovery but am concerned that, when this has healed enough, I must then detox from the strong pain meds that I must surely be addicted to by now. I feel that my future is both bleak and hopeful. Only time and God can tell. I wish I could have gained strength and encouragement from all of you here. If you still have no name for the pain you've experienced from your flu shot, ask your doctor about PTS.

March 17, 2012 - 7:00pm


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