Concerned Mom - Thanks for sharing your story and your concern for your daughter. As Alison mentioned we've heard from several others who have been dealing with arachnoid cysts, and you may find it helpful to read their posts.
I would also like to invite you to join our arachnoid cyst support group which you can find at https://www.empowher.com/groups/arachnoid-cyst-support-group and also recommend a support group founded by an EmpowHER member, the Arachnoid Cyst Awareness Network, which is at http://arachnoidcystnetwork.com/acanetwork/.
Several patients have described symptoms like your daughter's and have worked with doctors who told them that the cyst did not cause the symptoms as well as doctors who helped them. You will likely be able to get good information from other patients as well as information on physicians who specialize in this area. We wish the best for both you and your daughter.
Comment Reply
Concerned Mom - Thanks for sharing your story and your concern for your daughter. As Alison mentioned we've heard from several others who have been dealing with arachnoid cysts, and you may find it helpful to read their posts.
I would also like to invite you to join our arachnoid cyst support group which you can find at https://www.empowher.com/groups/arachnoid-cyst-support-group and also recommend a support group founded by an EmpowHER member, the Arachnoid Cyst Awareness Network, which is at http://arachnoidcystnetwork.com/acanetwork/.
Several patients have described symptoms like your daughter's and have worked with doctors who told them that the cyst did not cause the symptoms as well as doctors who helped them. You will likely be able to get good information from other patients as well as information on physicians who specialize in this area. We wish the best for both you and your daughter.
Take care,
November 16, 2010 - 5:08pmPat
This Comment
Reply