Mary, I am so sorry you're suffering so. I know very well that it is a rare doctor that believes or understands us with respect to these drug reactions. Don't give up.
Unfortunately, I do not remember the specialist's name as it was 10 yrs ago. I can tell you that he was at Georgetown University Hospital. You can try googling the hospital name along with "fluoroquinolone toxicity specialist" perhaps. You might also try the latter without specifying a hospital and come up with more options. I should mention, I didn't have any of your physical symptoms with heart and blood pressure. My symptoms were very much emotional and mental. I read that steroids and numerous other medications can cause a relapse of fluoroquinoline toxicity even many years down the road. This is scary for me as well, given my 89-yr-old mother was prescribed Prednisone at the same time she was suffering fluoroquinolone toxicity.
The moral of all my medical stories and most all of those I hear from others, we have to take the lead. Don't back down to your doctors just because they have MDs as they don't know our bodies better than we do.
Good luck. I wish you recovery.
Susan
There are more an more support groups. Perhaps you've already researched and found them. Hopefully others currently dealing with similar symptoms can help you. I found these:
Comment Reply
Mary, I am so sorry you're suffering so. I know very well that it is a rare doctor that believes or understands us with respect to these drug reactions. Don't give up.
Unfortunately, I do not remember the specialist's name as it was 10 yrs ago. I can tell you that he was at Georgetown University Hospital. You can try googling the hospital name along with "fluoroquinolone toxicity specialist" perhaps. You might also try the latter without specifying a hospital and come up with more options. I should mention, I didn't have any of your physical symptoms with heart and blood pressure. My symptoms were very much emotional and mental. I read that steroids and numerous other medications can cause a relapse of fluoroquinoline toxicity even many years down the road. This is scary for me as well, given my 89-yr-old mother was prescribed Prednisone at the same time she was suffering fluoroquinolone toxicity.
The moral of all my medical stories and most all of those I hear from others, we have to take the lead. Don't back down to your doctors just because they have MDs as they don't know our bodies better than we do.
Good luck. I wish you recovery.
Susan
There are more an more support groups. Perhaps you've already researched and found them. Hopefully others currently dealing with similar symptoms can help you. I found these:
http://www.cipropoisoning.com/p/helpful-suggestions.html
March 23, 2011 - 6:45amhttp://noquinolones.proboards.com/index.cgi?action=newestthreads
http://www.fqresearch.org/
This Comment
Reply