Anon - It's heartbreaking to read your concerns for your mom, and thanks so much for writing and sharing them. I am a leukemia patient and am single, so I am my own caregiver. While I am doing well now I also know my illness could turn on a dime and kill me and have had to take into account the same concerns that you have.
The more you understand your mother's illness, and can relate to it with her, the better. Here is a link to information that will help you understand many different aspects. http://www.nlm.nih.gov/medlineplus/pulmonaryfibrosis.html
The Pulmonary Fibrosis Foundation may be able to help you in gaining information about the final stages of the disease and what patients experience. http://www.pulmonaryfibrosis.org/
If they can't help you another group that typically has local chapters and strong support services is the Lung Association. http://www.lungusa.org/
I don't know your mother's age, but I've found that older patients can be very reluctant to take a head on look at their illness and life situation. I hope you will continue to be patient and work with her as best you can so that you can help her, as well as yourself and your own family.
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Anon - It's heartbreaking to read your concerns for your mom, and thanks so much for writing and sharing them. I am a leukemia patient and am single, so I am my own caregiver. While I am doing well now I also know my illness could turn on a dime and kill me and have had to take into account the same concerns that you have.
The more you understand your mother's illness, and can relate to it with her, the better. Here is a link to information that will help you understand many different aspects. http://www.nlm.nih.gov/medlineplus/pulmonaryfibrosis.html
The Pulmonary Fibrosis Foundation may be able to help you in gaining information about the final stages of the disease and what patients experience. http://www.pulmonaryfibrosis.org/
If they can't help you another group that typically has local chapters and strong support services is the Lung Association. http://www.lungusa.org/
I don't know your mother's age, but I've found that older patients can be very reluctant to take a head on look at their illness and life situation. I hope you will continue to be patient and work with her as best you can so that you can help her, as well as yourself and your own family.
Take care,
January 24, 2011 - 5:58pmPat
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