Thanks for yet another great piece Jody. Number 9 definitely struck a chord for me. I was ten years old when I was diagnosed with this cruel illness. I turn 30 in September this year. Over the years I have managed to learn to drive (took forever!), but I have missed out on most of the "normal" youth experiences, good and bad. I have learned to accept that I have my limitations and that after so many years, this disease will probably never fully leave me, I'll just have good years and bad years.
It's nice to know there are others out there who understand, as there are all too many who don't. Those who think just because they see me looking ok (hair done, and make-up on, to make sure I don't look as bad as I feel!), that I must be ok. Or because I blow all my energy helping them do something that should be easy, that I must be able to do more than I am able to.
Please keep writing these pieces, as it helps more than you can possibly know to be able to have it put into words to share with the people near and dear to me.