The best thing to do is follow your doctor's advice, and make an appointment with the high-risk GYN oncologist that you were referred to.
I am confused, however, as you said that a "mass" was found in your breast, but I am not sure why you are being referred to a high risk specialist without a specific diagnosis? Is your mass something more than a cyst or other non-cancersous lesion?
If you have not had a diagnostic test done, and have only had a screening conducted in which a "mass" was found, please know that 80% of masses or lumps found are not cancerous. It is important to follow your doctor's recommendations to make an appointment with the doctor s/he referred you to, in order to rule out certain possible conditions. Only then can you begin deciphering through the numerous potential types of conditions, but right now, it would be premature for us to speculate on what your mass could possibly be. There is too much information (which is a good thing!) to begin weeding through, but once you have more information about a specific diagnosis, we are here to help provide all of the information, resources and emotional support you need!
Are you going through any treatment(s) for your bone marrow edema or other symptoms/conditions?