Wow. What a Journey you and your family have been through. I'm sorry that you have battled this rare disorder and even more sorry that your doctor's dismissed you so early on.
Thanks so much for sharing your story and for inspiring others to continue doing their own research when their bodies are telling them that something is wrong. I'm glad you finally have an answer and hope that your new medication will change your life for the better :)
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Dear ElisaRoss,
Wow. What a Journey you and your family have been through. I'm sorry that you have battled this rare disorder and even more sorry that your doctor's dismissed you so early on.
Thanks so much for sharing your story and for inspiring others to continue doing their own research when their bodies are telling them that something is wrong. I'm glad you finally have an answer and hope that your new medication will change your life for the better :)
Best Wishes to you and your family,
Rosa
August 21, 2011 - 1:25pmThis Comment
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