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I am so sorry you have gone through such an ordeal, but after reading your post...it DOES sound like you found a doctor who will listen.

You have a diagnosis of MS, correct? Have you learned all you can about MS (multiple sclerosis), and confirmed that your symptoms and tests confirm this diagnosis?

You have been out of your pain medication for a few days now...how are you doing?

I am confused about the blood tests that you had taken, and the doctor said they were not able to get any results because your blood clotted. Were these tests redone, or did you have any exams to determine WHY your blood was clotting? This may be irrelevant now, if your MS diagnosis is the final condition that you have been confirmed with, and you can move forward.

Since you found a doctor who will listen (and, we can help you from this point forward as well!), can this doctor refer you to a Pain Specialist who does accept Medicaid?

You can also request a copy of all of your medical records. I am not sure what the significance is of the nurse saying she will say you "doctor shopped" on your records...that is a strange "threat", and most doctors are going to treat your new condition with respect, and you can perhaps learn about yourself in this process (if you came across in a certain way that was off-putting to the health care professionals?).

We can talk about how to receive the best care from your doctors, and if you have any behaviors that you can change in order to advocate for yourself, while also giving the doctors and Nurse Practitioners (who are EXCELLENT at providing care, and can prescribe treatment...don't underestimate an N.P.!) mutual respect.

One way to advocate for yourself is to keep a record of your doctor visits, prescriptions, as well as your symptoms. You may have already done this, but it takes some of the emotion out of the equation (although, this is certainly a place for this!) and helps everyone look at the facts regarding symptoms, treatments and diagnosis.

Please let us know how you are doing now, what your plans to move forward with MS are, and to confirm that you do have a doctor who is caring and willing to help you through this new diagnosis. I am truly sorry you have gone through such a terrible experience, as you seem to have found some doctors who were not putting you first as a patient, and there is no reason for their unprofessional behavior. What we can do is help you move forward, be the best patient advocate AND form the best patient-doctor relationships to receive the best care possible. Please let us know how we can help, and we can also help you in finding resources in your area.

Here is a great starting place to learn more about MS: https://www.empowher.com/condition/multiple-sclerosis.

October 30, 2011 - 10:53am


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