YES, you must stay involved and be a voice for this illness. you are what we need: a healthy person who can advocate for us. A lot of why we can't get more done on the advocacy front is because we don't have healthy folks who can do the work that needs to be done.
By the way, I had a 7 year remission once. Then the illness came back just as bad. And it has now lasted 21 more years. So do be careful.