What does your CPK number stay at now?? I have Polymyositis, take Metotrexate and mine stays around 150 or so. Dr says as long as its below about 175 it is considered not active? I was finally diagnosed end of 06 and it took 5 specialists almost a year to do it. In the meantime, I went without meds and continued to get worse. I am much worse now than I was in 06 when I was diagnosed. I cant go up stairs now at all, cant get out of the seats at church or the movies, and have to be very careful about falling. Just wondering if you have any issues like this? I am at my end and dont know what to try. My insurance wont pay for physical therapy anymore because I didnt show enough improvement for them to think it was beneficial. Any suggestions are welcome.
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What does your CPK number stay at now?? I have Polymyositis, take Metotrexate and mine stays around 150 or so. Dr says as long as its below about 175 it is considered not active? I was finally diagnosed end of 06 and it took 5 specialists almost a year to do it. In the meantime, I went without meds and continued to get worse. I am much worse now than I was in 06 when I was diagnosed. I cant go up stairs now at all, cant get out of the seats at church or the movies, and have to be very careful about falling. Just wondering if you have any issues like this? I am at my end and dont know what to try. My insurance wont pay for physical therapy anymore because I didnt show enough improvement for them to think it was beneficial. Any suggestions are welcome.
February 27, 2012 - 2:33pmThis Comment
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