Thank you so much for reading my story and the support. I'm so happy to have found this site. I was asked to share my story by Kali, and never imagined it would be so theraputic to get it all out. It took a while to find a balance after this happened. I went thru different stages of depression where I felt angry and cheated. But my fiance who is amazing pushed me to keep searching aggresively for a doctor, to join forums to find support and alternative treatments. He's my light and my support!
Again, thank you for your kind words. I will be sure to keep you updated on my treatments and results for EDS. My Doctor just wrote a scipt for celebrex which should cut down on inflammation, so that sounds promising!