We are aggravated at the lack of research and true response to this disease. There should be more research for the cause of this disease, and even more research into finding a cure, or at least longer lasting help. Surgery scares me because I see where people have it come back in the same spot, or worse in other parts of their body. Also, I have seen the pictures of surgeries, and heard about MRSA and other skin diseases and disorders that come after surgery. There are so many risks that come with the temporary answers. We just ask that the truth be told, and that people are shown the truth of having a disease that is like cancer, except you don't you don't die from this, but for a lot of us, the suffering makes you feel like you are dying.