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Anonymous

I have had HS for at least 8 years? It seems questionable because I dealt with these lesions for several years before it was actually diagnosed. What I remember most is the outpatient surgical procedure to excise the legion under my arm which had become severely infected. I will never forget the pain... I have learned to tolerate using spray deodorant and antibacterial soap, but I simply can't go without shaving under my arms. Aerosol deodorant is so much more costly that I've found myself using speed stick because it's the only deodorant I can find that doesn't clog my pores. Clogged pores and shaving are two of the causes of these legions. Of course, I can't explain what causes the legions that appear on my bikini line or elsewhere in my pubic area. I've started a group on facebook entitled "Hidradenitis Suppurativa: Story of My Life" and so far 19 people have joined the group. I have discovered one thing that seems to help with the symptoms. It's called Defense soap and can only be purchased online. It's supposedly strong enough that UFC fighters use it to protect them from bacteria they may come in contact with while fighting and sweating profusely. I wish a doctor would figure out something. I just had one big lesion on my armpit, and even worse, this is the armpit that was opened up about 3 years ago. My armpits are permanently scarred and I don't like to wear sleeveless shirts for fear that someone may see the scars or the open sores under my arm. I'm still angry...

June 8, 2012 - 3:43pm

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