This is a debilitating illness and doctors/ researchers need to start polling how many of us really live with this illness. Im sure there are millions!!! This is consistently listed as a rare of "orphan" illness but its not!! Im sick and tired of cries falling on deaf ears and visiting doctor who dont know what this is and how to treat it. I challenge everyone who reads these blogs to comment and take action in some fashion so that we can be counted!!!
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This is a debilitating illness and doctors/ researchers need to start polling how many of us really live with this illness. Im sure there are millions!!! This is consistently listed as a rare of "orphan" illness but its not!! Im sick and tired of cries falling on deaf ears and visiting doctor who dont know what this is and how to treat it. I challenge everyone who reads these blogs to comment and take action in some fashion so that we can be counted!!!
June 22, 2012 - 8:05amThis Comment
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