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I am so glad I found you! Thank you so much for your explanation for narcolepsy with cataplexy. I have exactly the same symptoms It sounds like my same exact story. It is a relief to here there is someone going through exactly what I am. I have met few people with this disorder but few that I have don't have the cataplexy. My narcolepsy is totally different as well. I don't fall asleep at any given min. I wake up with no problem and if I feel sleepy I can usually snap myself out of it depending on what I'm doing. It's good to here about someone that o can relate too because cataplexy has been the hardest to deal with. It's also hard to explain it to people. And Julie described it perfectly... Now I have references that I can show to family, friends, and most of all my family. I wish I could talk to her. Or someone that is going through it like we are. Thank you again for making people aware of this. I will pass it on

November 27, 2014 - 12:21am

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