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Anonymous (reply to Helena)

Thank you Helena and anyone who has read my post. I’m sure it was a bit confusing as I have been on “auto pilot,” for most of the last two weeks trying to keep my father together and stay strong for my mother. It was most certainly both a blessing and miracle that we brought her home but still many questions are left unanaswered. I guess we will work through them as best we can. I feel very fortunate to have much of our family in this area to be able to help one another through these tough times.

We won’t see our director for a follow up for another week or two, and the time between we are adjusting to a home nurse and PT schedule.. just hoping that she continues to work with the CPAP at night in order to have the strength in the following day. As long as she braves the anxiety of the mask at night, we seem to have really good mornings but her energy is spent. It has taken a lot out her I know, and heart breaking to watch my mother struggle with a walker, a wheel chair and being tethered to Oxygen. (But grateful regardless as it is saving her life!)

How do you adjust to a new way of life? I worry too for my dad who has been under this incredible amount of stress. I’m 35, have helped them with both sides of caregiving to their mothers (her mother still in nursing home and she was there every day up until a month ago.) I guess we always knew at some point she would have a problem having smoked for 40 years, I just wasn’t ever ready to see it go this way and so fast. It’s as if she turned into her own mother overnight..

Thanks for letting me ramble if you made it this far.

November 20, 2017 - 2:56pm

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