Anon, let me see if I have your information right.
1. You started out with pain and when you went to a doctor for it, he did a blood test, is that right? CPK stands for Creatine phosphokinase; were there other things going on at the time as well, or things your doctor was worried about, such as your heart, brain, kidney or muscles?
2. And due to this test, he recommended a neurologist, but you were in the hospital before you were able to see the neurologist. You were told you had Rhabdomyolysis, which is a condition in which muscle fibers break down and release their contents (myoglobin) into the bloodstream, which can hurt your kidneys. At the time, did the doctors in the hospital think it was related to your thyroid?
3. After a week you had a normal CPK. But how much time had gone by before you had the test that showed 700 again? At this time you were told about the Polymyositsis, a condition that causes inflammation and muscle weakness.
4. What was it that was biopsied?
5. And you now will soon have an appointment again with your family doctor to discuss treatment of the inflammation of polymyositis?
Do I have those details right? Can you fill in the questions for me?
First of all, if I were you I wouldn't worry too much about the fact that it has taken a bit of time to get some answers. It's frustrating, but it's the way it happens sometimes, as doctors rule out some possibilities and symptoms present themselves that demand new explanations. It's horrible that you had to have an emergency trip to the hospital that lasted six days; i'm sure that was uncomfortable at best and frightening and expensive at worst. And it's infuriating that you didn't get all the proper information at the time. Argh!!! But it sounds like you're on a road to some proper information now, which is promising.
Do you have any other medical conditions going on?
What thyroid medicine do you take, and at what dose? Any other medications?
I ask because we can submit your question to one of our experts and see what they have to say while we wait to see if any readers have gone through similar experiences.
In the meantime, here's EmpowHer's encyclopedia page on polymyositis:
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Anon, let me see if I have your information right.
1. You started out with pain and when you went to a doctor for it, he did a blood test, is that right? CPK stands for Creatine phosphokinase; were there other things going on at the time as well, or things your doctor was worried about, such as your heart, brain, kidney or muscles?
2. And due to this test, he recommended a neurologist, but you were in the hospital before you were able to see the neurologist. You were told you had Rhabdomyolysis, which is a condition in which muscle fibers break down and release their contents (myoglobin) into the bloodstream, which can hurt your kidneys. At the time, did the doctors in the hospital think it was related to your thyroid?
3. After a week you had a normal CPK. But how much time had gone by before you had the test that showed 700 again? At this time you were told about the Polymyositsis, a condition that causes inflammation and muscle weakness.
4. What was it that was biopsied?
5. And you now will soon have an appointment again with your family doctor to discuss treatment of the inflammation of polymyositis?
Do I have those details right? Can you fill in the questions for me?
First of all, if I were you I wouldn't worry too much about the fact that it has taken a bit of time to get some answers. It's frustrating, but it's the way it happens sometimes, as doctors rule out some possibilities and symptoms present themselves that demand new explanations. It's horrible that you had to have an emergency trip to the hospital that lasted six days; i'm sure that was uncomfortable at best and frightening and expensive at worst. And it's infuriating that you didn't get all the proper information at the time. Argh!!! But it sounds like you're on a road to some proper information now, which is promising.
Do you have any other medical conditions going on?
What thyroid medicine do you take, and at what dose? Any other medications?
I ask because we can submit your question to one of our experts and see what they have to say while we wait to see if any readers have gone through similar experiences.
In the meantime, here's EmpowHer's encyclopedia page on polymyositis:
https://www.empowher.com/media/reference/polymyositis
Be sure to check out the great links on the bottom of that page that will take you to other sources of info on this.
and here's a page from the Mayo Clinic on polymyositis:
http://www.mayoclinic.com/health/polymyositis/DS00334
Were you given any medicine except your normal thyroid medicine when you left the hospital? Corticosteroids, for instance? Or physical therapy?
Please write back and update me and let's see if we can find out more for you.
April 27, 2009 - 9:18amThis Comment
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