Thank you Miss Diane for responding,My name is Melissa,I;am 39 years of age,to start
1)I had hyperthyriod in Nov 08,Dec 08 was givin a radiation Iodine treatment.
2)Now Hypothryriod levels are good,taking 150 mcg Synthriod.
3)Cheif Complaint was sevre cramping, I couldnt begin how to explain it,felt worst then giving birth to a baby, thats how much it hurt.
Went to family dr several times,he did bloodwork such as calcuim and possatuim.come back fine.He would give me a shot for pain but didnt releive it.He then got in touch with a Neuro,but they couldnt get me in untill April, and this was early feb.
4)3-6-09 I was rushed to ER by Ambluance 2 hrs away, told I had Rhabdomyolysis was on iv FOR 6 DAYS.During the stay finally got to see a neuro and he said it was due to my thryriod, but my Endorologist said no cause my levels were ok.
5)Neuro has seen me 1 time in his office since, he ordered biopsy on my left deltiod.
6)Had biopsy done on 4-14-09
7)Neuro called on 4-23-09 stated biopsy come back and there was no major degeneration and he also stated he thought I had inflammation going on so he was going to send my records to my family dr, and have my family dr refer me to a Rheumy. Neuro also stated felt it was my thyriod still even after its been leveled for last 2 months.
8)Didnt find out about teating postive for polymyositsis untill 3 wks after I had come home,went back to family dr complaints still of pain,so he called Neuro,stated he had my records from hosiptal and I had tested positive for polym.
8)I now have trouble breathing, I get short of breath easily,so having a Echocradiogram done on 4-29-09.Also I'am very weak now, and I also now have problems with my fingertips when they get under cold water they hurt BADLY.
9)Only meds I was on were meds for epilepsy and lyica which neuro put me on, but they didnt help. so now I'am only on my thyriod med which is 150 mcg of Synthiod.
10)I know all of this is backwards what I'am telling you.
11) CPK still not normal and I'am still in pain and weak. Basically I'am not being treated for this diease.
Can you still have polymyositsis,when your neuro says NO major degeneration,but inflammation. CPK 398 still elevated and I still feel weak,still hurt,and now have some new htigns going on with me. ANy info is helpful. Thank you
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Thank you Miss Diane for responding,My name is Melissa,I;am 39 years of age,to start
April 28, 2009 - 4:37pm1)I had hyperthyriod in Nov 08,Dec 08 was givin a radiation Iodine treatment.
2)Now Hypothryriod levels are good,taking 150 mcg Synthriod.
3)Cheif Complaint was sevre cramping, I couldnt begin how to explain it,felt worst then giving birth to a baby, thats how much it hurt.
Went to family dr several times,he did bloodwork such as calcuim and possatuim.come back fine.He would give me a shot for pain but didnt releive it.He then got in touch with a Neuro,but they couldnt get me in untill April, and this was early feb.
4)3-6-09 I was rushed to ER by Ambluance 2 hrs away, told I had Rhabdomyolysis was on iv FOR 6 DAYS.During the stay finally got to see a neuro and he said it was due to my thryriod, but my Endorologist said no cause my levels were ok.
5)Neuro has seen me 1 time in his office since, he ordered biopsy on my left deltiod.
6)Had biopsy done on 4-14-09
7)Neuro called on 4-23-09 stated biopsy come back and there was no major degeneration and he also stated he thought I had inflammation going on so he was going to send my records to my family dr, and have my family dr refer me to a Rheumy. Neuro also stated felt it was my thyriod still even after its been leveled for last 2 months.
8)Didnt find out about teating postive for polymyositsis untill 3 wks after I had come home,went back to family dr complaints still of pain,so he called Neuro,stated he had my records from hosiptal and I had tested positive for polym.
8)I now have trouble breathing, I get short of breath easily,so having a Echocradiogram done on 4-29-09.Also I'am very weak now, and I also now have problems with my fingertips when they get under cold water they hurt BADLY.
9)Only meds I was on were meds for epilepsy and lyica which neuro put me on, but they didnt help. so now I'am only on my thyriod med which is 150 mcg of Synthiod.
10)I know all of this is backwards what I'am telling you.
11) CPK still not normal and I'am still in pain and weak. Basically I'am not being treated for this diease.
Can you still have polymyositsis,when your neuro says NO major degeneration,but inflammation. CPK 398 still elevated and I still feel weak,still hurt,and now have some new htigns going on with me. ANy info is helpful. Thank you
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