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When you get tested for Cushings, make sure that the tests include adrenal and antibodies. Without the adrenals test it's likely you're going through even more body pain than you have to- believe me, I'm going through the exact testing processes you are about to. Bring a check list of symptoms. Bring a diary of sorts- of the days and times you were in pain, or had issues. You'll start to see patterns- in the mornings, you may feel like you're not rested. If it's 2pm, you may have an increase of pain for no obvious reason. Keep track of the patterns, and also keep track of what you've eaten- when there is caffeine, when there is salt, and when there are sodas.

All chemicals are affecting your hormones. If you eat red meats, note that. If you eat soy, note that. Soys and hormone injected meat will cause havoc on your thyroid, pituitary and cortisol.

Also note if you've taken birth control pills, and for how long, as your estrogen levels may be elevated.

Pseudo-Cushings and Cushings Syndrome are often discounted by endo's because they don't know what you're like when you're NOT being affected by cortisol. Normal for you may not be what "Normal ranges" are on tests. See if you can get a record of any tests you've had- and if there are patterns of increases or decreases in triglycerides, hormone levels, and sodium. So few doctors know how to properly test- they just do 24 hour urine, or saliva, but not both. They do blood serum, but not serum, urine, and not over a period of time. The only way to know if you're going through cyclical cushings is to test for a full month- expensive but worth it.

Hang in there... the Cushing's Support board is WONDERFUL.

January 14, 2009 - 4:53pm

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