I have a question for anyone who thinks they have good advice I would love to hear!SIDS-an unexplained sudden death of an infant So if that is the definition how can an almost 9 month old baby who was sick for a week leading up to death be titled this?My daughter was sick with symptoms that appeared to be a virus of some kind for a week over this course of this week she seen her family doctor 3 times he said she might have rota-virus but he never tested her for it he also explained she had an ear infection.So me an her dad did everything we were told to do for her,fluids an such also she was put on antibiotic for ear.It got to the weekend an she appeared to be getting worse on this sunday of this week she looked out of it an stopped peeing an had white stuff around her mouth she was clearly dehydrated,clearly I could tell I'm not a doctor but the signs were obvious no peeing for 2 days so I called her doctor at home an he said he would fax a letter to hosp to start an iv an admit her so we took her an they took blood work an said no dehydration an sent her home I was confused an just listened to er doctor because hes the doctor not me.The next day I layed my daughter down for a nap because she looked so tired an sick like she neeeded rest,well I went back to her an found her not breathing an purple which is very traumatizing we rushed to hospital an they bagged her meaning recussitated her she had to be flown to a better hosp where she started improving an stayed overnight hooked up to everything u can imagine she seemed to be doing better but she never opened her eyes because she lost alot of oxygen to brain I prayed over her an sang to her all night an next morning her heart rate increased an she was given shots to slow her heart down which actually killed her right on the spot.I am so pissed off an angry I feel like this isn't right an someone messed up an now I live wondering what really happened,I just need answers I am so heartbroken an lost with out her does any one on here have any clue or see where this all went wrong?sincerely a grieving mother
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thank you so much and yes they did perform one an I have a copy of it I don't really understand it also I think they wrote false info on it.At the time of her passing chaplin said to get an attourney
July 14, 2010 - 7:43pmThis Comment
Mrs. Clark - It's heartbreaking to learn about your daughter, and it was probably painful for you to write, but I'm glad that you did. I encourage you to reach out to other parents who have lost their children, as there are few people who can understand how profoundly you are grieving as well as others who've been in your same shoes. SIDs Families is one such group, and can be found at http://www.sidsfamilies.com/.
The medical profession sometimes uses terms that seem very confusing. Sudden Infant Death Syndrome - SIDS - is used as a term that covers the unexpected, sudden death of a child under the age of one year in which an autopsy does not show an explainable cause of death.
I don't mean to cause you any additional pain, but do you know if an autopsy was done and if so, did you get a copy of the results? If a virus was involved then that should show on the autopsy results. You are entitled to this information and the hospital where she died should be able to tell you how to get the report.
As a lay person, it's hard for me to know exactly what happened to your daughter. It may help to find an unbiased pediatrician or nurse practitioner to meet with who can review all of the circumstances around your daughter's death and help you to better understand this. It would help them have as much clinical data as possible. You are entitled to, and should be able to get copies of, all of her medical records. You may have to pay copying charges to do this, and this will likely be hard to do so you may want to get a friend to help you in going after this information. You may also have to pay a consulting fee to meet with the medical professionals. I truly wish there was an easier way to follow up on this, but I want to address your concerns as honestly as possible.
The National SIDs Alliance provides support for families that are grieving the loss of a child, and they have helpful information on a lot of different areas that are going to come up soon that you haven't even thought about yet. They also have grief counselors who are available 24/7 at this number: 1-800-221-7437. The page on their website for families like yours is http://www.firstcandle.org/grieving-families/
I hope you will call one of their counselors after reading this. Please let me know if this helps, and if you need additional information. I'm sending you a big hug through the computer, and am happy to help as best I can.
Take good care of yourself,
July 14, 2010 - 6:23pmPat
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