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Pain with MS?

By October 28, 2011 - 8:14am

Okay, my story, as short as I can! 6 years ago, I was fixing the toilet. I opened the back and when I felt the water I flipped out! It was hot! Everyone thought I was crazy! I had an MRI on my back, it showed 4 bulging discs. Then, my hands and feet go numb. I cant walk down stairs, my legs shake SO bad. My eyes go blurry, sometimes, mostly when looking at the computer. My DR says its nerve damage bc of the bulging discs. He gets tired of me and sends me to pain mgt. The pain is UNBEARABLE!! I cant take it! In between my shoulder blades BURN, my lower back aches, my legs feel, well, like a BAD toothache, thats the only way I can describe it. I only saw the pain dr twice in 9 mths. I begged to see him again, well, I did and he was SOO irritated. He decreased my pain meds and told me to get another expensive injection, I said no! There is something wrong here! The pain is getting worse, and Im losing control of my legs! He told me to find another DR. Well, I had one to tell me to stop the bull ****, anyone 29 and looking for pain pills is an addict. I was crying trying to tell him my symptoms, he said compose your self and leave. Finally I saw a DR who told me it could be MS. I have an MRI tues. He said he wasnt comfortable giving me my pain meds. So, I feel like I might die. I cant get off the couch. He said MS doesnt hurt like I am saying I hurt. So, does anyone else have indescribable pain? I had been on this pain killer, a strong one, for 6 years. Im so scared that the pain will get too bad, that I wont be able to handle it. I am a single mom with 2 kids, one of which is disabled. Im scared I wont be able to take him trick or treating. Sorry for the book. I just have so many questions about MS. Im sooo scared!

By November 21, 2011 - 6:40pm

Ive had many drs tell me that the pain was in my head, that i was making it up because im a drug seeker, that i just wanted attention...none of which was or is true at all...i was eventually diagnosed with fibromyalgia - that was almost a year and a half ago. most recently i have been disgnosed with MS. when this diagnosis came up, i asked if a dr had made a mistake in diagnosing me with fibromyalgia. i was told that no, it was probable that i have both. but, i do know the feeling.

November 21, 2011 - 6:40pm

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On monday I was dignoised with RRMS (Relapsing-Remitting Multiple Sclerosis) I would like to here from people that know what I am going through and how to deal with the news in a productive and positive way.


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