I have Systemic Lupus and have had it since the age of 14. Mostly it was mild although I had Heavy periods and the first one worst. After high school i stopped seeing the lupus specialist in my town I had been going to for years who was always taking my blood for platelet counts that were low. He talked about taking my splean out but i wasn't insured and had moved. I am 33 years and have my son who has special needs and my daughter who passed away on March 25 2000. That is when the lupus became worse. Well here it is 2011 and i was diagnosed with Pulmonary hypertension in 2005 after I was already in stage 4. It was a long and challenging time and i am currently on a one day at time and try to exchange quiestions about many things and learn new treatments out there for lupus and pulmonary hypertension.