I believe patients' rights to privacy are very important towards ensuring they can recover in the fullest sense of the word. Ideally every patient should have compassionate advocates who are very determined, persistent, diplomatic, articulate, pragmatic, persuasive, who can guide, coordinate and positively influence the efforts of the medical professionals they encounter.
Herein lies the problem, finding the culmination of all those talents and abilities in one person would at the very least require a RN with hands on experience in area that you are seeking medical attention in. For example, if you dealing with IBC - Inflammatory Breast Cancer, ideally that RN would have been a Clinical Research Coordinator in the Women's Cancers Program at a major Cancer Center specializing in IBC Research. The reason why is during your initial onset of that disease there is a very strong chance it will be misdiagnosed. There will be confusion as to identifying what disease process you are going through and critical treatments options might be passed at a time when they are most likely to have the greatest positive impact for this relatively rare (less than 5% of new cancers) but very aggressive form of breast cancer that is not picked-up by mammograms, but through an MRI. Treatment after identifying that you do have breast cancer and possibly IBC, would need to be IMMEDIATELY confirmed by MRI. Subsequent test would be looking to confirm suspicion of your having a Triple negative breast cancer. Triple negative breast cancer tests negative for estrogen receptor (ER), progesterone receptor (PR) and human epidermal growth factor receptor 2 (HER2). Once confirmation of the type of breast cancer you have triple negative IBC, aggressive Oncology, Radiation, and surgery would all have to be coordinated together with further MRIs, Physical Therapy, and plenty of blood work to track you the progress of your health and effectiveness of the treatment.