I can understand your concerns. The coordination and agreement of treatment between specialists is so important. I was diagnosed with a rare form of brain cancer in 2007 and have been in active treatment since then, so I truly understand your dilemma. I agree with Alison that your son's physicians are your best resource. You are your son's most valuable advocate. From personal experience, I can say that you need to ask to have the test results explained to you, if the physician does not do so on his or her own. A lack of understanding can lead to fears, anxiety and misconception. Will keep your son and your family in my thoughts and prayers.