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Can you please give me some information on Medullary Sponge Kidney? I am 19 years old and was just diagnosed with this condition. I'm hoping you can give me some credible resources and some alternative treatments/preventative things I can do to manage th

By Anonymous June 29, 2012 - 6:20pm
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I would love to do meet another young woman like me who's been diagnosed with the same condition. Thanks so much! R

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EmpowHER Guest

Hi Anonymous,

Thank you for your question and welcome to Empowher. For your condition, here is a link for some further information http://kidney.niddk.nih.gov/kudiseases/pubs/medullaryspongekidney/.


Can you give us some  information about what your doctors have suggested for treatments so we can offer you alternative suggestions? Thanks.


June 30, 2012 - 8:20am
EmpowHER Guest
Anonymous (reply to Anonymous)

Medication for the UTI. That's it!! I would love some ideas of how to manage my condition. Looks like EmpowHer has a lot of alternative treatments. Were you able to find anyone else on your site that has this condition? Thanks R

June 30, 2012 - 9:29am
EmpowHER Guest
Anonymous (reply to Anonymous)

Hi, I'm a 20 year old woman who was diagnosed with sponge kidneys when I was 19. I've had luck searching the web for more information if you just type the condition into Google. As far as preventative measures, my doctor instructed me to increase my water intake greatly and to consume anything containing citrus. I try to drink OJ and lemonade once a day or once every other day. I also try to incorporate lemon whenever possible, such as putting it in my water. I was also instructed to stay away from loose tea leaves, mainly green and black teas. As a tea drinker, I have found alternative ways to enjoy tea. This includes putting lemon slices in hot water, ginger, and drinking African roobios tea. I haven't had any more kidney stones since my diagnosis in November 2011, so I plan to keep this regimen up.

July 11, 2012 - 5:55pm
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