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I would love to do meet another young woman like me who's been diagnosed with the same condition. Thanks so much! R
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Hi Anonymous,
Thank you for your question and welcome to Empowher. For your condition, here is a link for some further information http://kidney.niddk.nih.gov/kudiseases/pubs/medullaryspongekidney/.
Can you give us some information about what your doctors have suggested for treatments so we can offer you alternative suggestions? Thanks.
Missie
June 30, 2012 - 8:20amThis Comment
Medication for the UTI. That's it!! I would love some ideas of how to manage my condition. Looks like EmpowHer has a lot of alternative treatments. Were you able to find anyone else on your site that has this condition? Thanks R
June 30, 2012 - 9:29amThis Comment
Hi, I'm a 20 year old woman who was diagnosed with sponge kidneys when I was 19. I've had luck searching the web for more information if you just type the condition into Google. As far as preventative measures, my doctor instructed me to increase my water intake greatly and to consume anything containing citrus. I try to drink OJ and lemonade once a day or once every other day. I also try to incorporate lemon whenever possible, such as putting it in my water. I was also instructed to stay away from loose tea leaves, mainly green and black teas. As a tea drinker, I have found alternative ways to enjoy tea. This includes putting lemon slices in hot water, ginger, and drinking African roobios tea. I haven't had any more kidney stones since my diagnosis in November 2011, so I plan to keep this regimen up.
July 11, 2012 - 5:55pmThis Comment