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Diagnosing nightmare

By January 16, 2016 - 10:22pm
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I was always a thin girl, with light monthlies that came promptly and lasted 5 days. Even after having 2 kids I still dropped back down to 130lbs and felt good. In 2010, I started having horrible periods. They would last anywhere from 10 days to 2 months. After seeing many differnt gyn, I was finally told I had Adenomyosis. I ended up having a hysterectomy, only to find out there was no sign of Adenomyosis. I do still have both ovaries. I had started gradually gaining weight in 2011, and nothing I did seemed to help. Then the symptoms started piling up. Night sweats, body aches, joint pain, acne outbreaks, daily headaches, horrible fatigue, arm and leg weakness, high blood pressure, anemia, lower back pain,petechiae, i now weigh 192 lbs, my face is always red. I have had multiple cbcs and cmps, ana, vit d test, mri of my lower back. I have cut soda and sweets completely out of my diet, and I'm careful about what i eat. Noone can tell me what is wrong, and my current dr is very dissmissive. I've seen a Gi, Rheumatologist, cardiologist. Just wondering if anyone has been through anything similar or has any ideas.

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Hello and welcome to EmpowHer,
I am heartbroken to hear your story and I'm so sorry that traditional medicine has so completely let you down. I hope the information I give will help somewhat.
I am seeing a few things going on here. First of all, since having a hysterectomy was completely unnecessary, your body is most likely struggling to compensate for the lost organ. The uterus plays a huge role a regulating hormones. The following symptoms you described: night sweats, body aches, joint pain, acne outbreaks, daily headaches, horrible fatigue, arm and leg weakness, unexplainable weight gain, anemia; can all stem from hormonal imbalances.

The other issue such as high blood pressure and petechiae, most likely developed due to the stress your body in under to compensate after the hysterectomy.

I understand how dismissive and unapologetically aloof doctors can be, so I do not want to simply send you back into the system to flounder.
Since you have tried most avenues in traditional medicine, I suggest you try herbal/holistic medicine. I would start by consulting with holistic doctors with the perspective that everything got worse after the surgery. Keep in mind that the original reasons why you had horrible periods was misdiagnosed. Then the surgery made it worse.
So, the first step is the check your hormonal levels and look into hormone therapy either in holistic medicine or traditional medicine, whichever you prefer.
I hope that helps a little bit. Let us know if you have any more questions.

January 17, 2016 - 1:43pm
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