Facebook Pixel
Q: 

Due to have a hysterectomy but am scared to death after viewing a video about side effects!

By April 5, 2009 - 4:04pm
 
Rate This

I have generally accepted my doctor's recommendation that I have a hysterectomy due to a very large uterine fibroid (15 cm) that is displacing my bladder. I also have cysts on my one remaining ovary so that's supposed to come out too. But after viewing a video link from your website, I don't know what to do. It was reported that 80% of women experience serious quality of life issues afterwards. I don't like those odds! Are there women out there who don't have serious problems after a hysterectomy? The link I viewed was from a Share story called Female Anatomy: http://hersfoundation.org/anatomy/index.html. I also have a history of breast cancer.

Add a Comment196 Comments

(reply to Anonymous)

Hello Everyone,
First of all, Toodles - I read again your first comment which started this dialogue. I know your comment of "Get It Done" started the reactions from others. Your are right; in that, there are "two sides to the coin"; but, I think you would agree that your statement of "Get it done" led to these others, as well as I did, to reciprocate to state the 'other side to the coin". As I expressed previously, I am so happy you had your Hyst. turn out well for you, and you are doing well in the aftermath by having it. I think you just must agree too; that when a Hyst. turns out badly, and ruins a female's life, and I mean ruin her life physically, emotionally, sexually, and with relationships also - this surgery is not "Worth It" to "Get It Done". Ones here were trying to convey to you that with speaking with any other female; do not have the attitude to say, "Get it Done". I would hope you would say to a female you may come in contact with who, just as Terri here, has been presented with needing a Hyst.; that you, yourself, would say to this person, "Make sure you research this, and do not make a hasty decision just because your doctor says you need to have one. You need to educate yourself. You should see more than one GYN, go to the Hers Foundation site, and get the educational information there of 'FACTS'. Go to other sites and become as knowledgeable as you can before doing this very major and life alterating surgery and one will hear from people as you, who have come out fine, but listen to the ones who have not." The factor is this: there are too many women who have not come out "fine". I, myself, if knowing what I know now (and wish I would have known all I do before my Hyst.) would have not done the surgery. I do mean this too - my doctor, who forced and scared me into this surgery which was unnecessary for me, (oh, he also wanted to, while in there, take my ovaries which were fine, remove my appendix, which was fine, and remove a birthmark type of small thing on my labia, which was fine, and never bothered me or my husband) had my faith in him; and how awful for me to find out afterwards I did not need the surgery, and should not have had it due to my RSD either; and I would have 'RAN' out of his office - knowing what I know now. This is the scary part, as I said, and will say again - "There is no going back", and why each woman needs to make a wise, educated, and above all - a VERY INFORMED decision. So, in essence, I am trying to convey this is what you want to state to any family member, friend, or acquaintance. Just not "Get it done." Again, I wish you well, always.

February 20, 2010 - 6:19pm

Thank you SeeDandy1 for making comment that was not ignorant, to say the least. My heart goes out to you and those who have suffered as a result of having the surgery. There are two sides to the coin and I was lucky enough to be on the other side. I wasn't taking away the pain that you and many others have obviously suffered. I merely reacted to the extremely offensive backlash I received because I have not encountered any of the devasting side effects over the years. Conversations can be held, views can be expressed, in a respectful, intelligent , and healthy manner. I thank you for doing so. I am not going to reply further to any of the readers who express themselves in insulting, bullish,taunting manners. I don't believe that this is the intended purpose for this forum. I wish you well, Toodles.

February 20, 2010 - 5:55am
EmpowHER Guest
Anonymous

Toodles said, "My remark "Get it done" meant explore your alternatives, surgery can be successful and not all terrible as "some" people would have one think. Get educated dear -closed minds solve nothing." It's interesting how you change it all around when you get called on it. You know as well as everyone else that it didn't mean to explore your alternatives, etc. I notice you never respond to the extensive damage it does to a woman or the fact that women get it done for sex changes. Toodles, it is not a good thing, it's like castrating a man, so don't go around pushing it on other women. I think it is reasonable to question your sex drive prior to surgery because after your sex organs have been removed, how could sex be better? It doesn't make sense to have better sex without sex organs. Be honest.

February 20, 2010 - 12:45am
EmpowHER Guest
Anonymous

During a hysterectomy you loose the support structure so if you didn't have prolapse repaires done at the time of surgery you probably will within two years of surgery? Did your doctor tell you that? Did your husband mention that he misses the cervix during sex? I think you have pain but you don't know why. You don't relate your pain to the surgery. I have read an article from 1897 that states how bad this surgery is for women. I think you are the one who need to get educated. Is all you are basing your assumptions on are your feelings. I know a women who says she is just fine but she sees a chiropractor. She doesn't relate her back pain with the surgery. My doctor didn't give me any options, but a hysterectomy, so I think what the doctor did is criminal.
Kiwi

February 19, 2010 - 2:32pm
(reply to Anonymous)

Kiwi:
You had plenty of options, plenty of choices. Another doctor's opinion for starters. Your doctor did what he was trained, "educated" to do. Had you educated yourself beforehand then you would not be such an angry and offensive person now. I had my surgery 10 years ago. I am not making any assumptions here-- I am stating facts based upon my experience. Think what you like. That is your choice. Express your opinion. That is your choice. In this case you are wrong. In the case of the woman seeking chiropractic relief you appear to be assuming, alot.
We can banter back and forth about who needs to get educated but quite frankly I can't be bothered. Your opinion doesn't change the fact that I had successful surgery and am not going to be bullied into stating otherwise.

February 19, 2010 - 3:33pm
(reply to toodles)

Hello Everyone,
I surely started some dialogue. To all who posted here of recent, and Nora, you, once again, state facts with what happens to a female's body with a Hyst. I also agree with others here and what said. I do say to you, Toodles, this: You were so fortunate that your Hyst., to you and with your husband's feelings, came out to be positive for you. You are so lucky. But, you are hearing back from women, and just like myself, who were not fortunate; and, what is so 'unfortunate' is that there are too many and in the 'millions' (yes, millions) who have been devasted physically (yes, physically) by having this surgery done. We, who speak up, are saying, "It is not worth it to take this chance." Women have been deceived by doctors and pushed into having this surgery, and the outcome has been to a horrific demise. The problems afterwards are so awful, and in many cases; even more life threatening. Women, as just as myself, realize horrible aftermath symptoms; such as, lower back pain, abdominal pain, continuous awful fatigue, bladder problems, other organ problems, prolapse of the lower body organs, to name a few... Now, I type here for my husband; as he is right here beside me. He says, "My wife was a vibrant, and esteemed achiever before her Hyst.. She had the stamina to do it all; even fighting her RSD. After the Hyst., she went downhill, and has suffered so many physcial problems, and seen so many doctors for help. The poor thing. But also, she and I, before the Hyst. had a great 'sexual relationship'. We were even teased by other married couples, our friends. We loved to 'make love' at least two/three times a week. We had been married for 22 years when she had the Hyst.."

I have a lingerie drawer full of sexy outfits and fishnet stockings; i.e., lots of great and alluring lingerie to 'spice' things up. This drawer, I am sure has 'cobwebs' in it now. I used to promote love making with my husband; such as sneek into the shower when he was taking one. I had my Hyst. on Dec. 29th, 2003. My husband and I have probably made love, since then, about five times. Due to the Hyst., I have lost my sexual desire completely. Again, this is hearing from a woman who was referred to as a 'sex kitten' before this Hyst., and my husband has certainly seen the change in me. I feel sorry for him. See, and too - it changes things with a relationship when a Hyst. turns out badly, and family and friends can even question what is wrong. This is awful, in itself. I am so thankful my husband is supportive. See, he knows that I was deceived, and should never have had the Hyst., and if I say something is wrong - there is.

We, who have had our lives completely turned around from the devastation of a Hyst. do get emotional. I am a firm believer that if men would be subjected to what we, the millions of women who have been hurt by having a Hyst. realize and face; it truly would be the same for them as cutting their penis's in half, and removing their testicles. How do you think any man would feel after this kind of surgery done on him? And that is just what can be seen on the outside with men. Women have this done to their insides; therefore, what cannot be seen, must not be. Wouldn't you believe that anyone would be compassionate for a male who had his penis shortened and balls removed, and not question why he has no sexual desire any longer, and must be in horrible physical pain, and trauma, and emotionally upset? This is what happens, in comparison, to women with the outcome of a Hyst., and I am 'living proof' of this.

Toodles, again, you are so fortunate, and I do want you to know I am glad to hear you were fortunate. You were hearing from the emotions of others here, and I am sorry the dialogue took this direction. Now, as far as doctors and what was trying to be conveyed with this is: Doctors do not give females enough information and advise women of all the alternatives out there. There are too many doctors, and if you go to the Hers Foundation website and read the blogs (one is: "Name That Doctor") you will have more compassion for women who have been ill treated by doctors, and too many out there who are just into pushing women into this for the money, power, and so uncaring. I, again, saw this 'first hand'. I also was scared into having a Hyst., and not advised on any alternatives, and the factor with fibroids, which I had, could have just shriveled up; as 'Mother Nature' would take her course. I also was never told of possible (and I say "probable") complications and problems by having a Hyst.. I definitely was not, by signing a 'Consent' ... 'Informed'. The GYN who forced/scared me into having this Hyst. was a man I had known for 18 years, and this is one other factor. I put my faith into him and trusted him. He also, in my personal case, aware I had the disease of 'RSD', a disabling nerve disease/syndrome. HE KNEW THIS. He should never have performed surgery on me; e.g., tried to find every alternative to avoid a surgery on me; which could cause the RSD to spread further. He already knew nerves, ligaments, and tendons are severed during this, and he had no consideration for me with this. How dare him not inform me.

I will never be the same as I was, I fear. I would love to be as you, Toodles. I am not, and I ask for you to just understand that women, as myself, are trying to save others from making a mistake when there are alternatives to this life changing operation for too many. Men would not have this done. Why should women? A doctor, with a man, would do everything possible to save his penis and testicles, and such. What is the difference with a female? "Worth It", as you said; I do hope you meant worth it to check all alternatives, and only do a Hyst. if it truly would mean life or death, and I fear for women that if they make this choice, and do it - the risk of complications - horrible complications - is not worth taking this chance of realizing in the aftermath, and THERE IS NO GOING BACK...

I speak with facts and first hand experience, and have heard too many just like me who are like this - in the millions. This statistic is too many. We need to thank all at the Hers Foundation for getting the 'Word' out so women can make informed decisions and truly be educated. I wish I would have been, and I should have heard from that doctor what I had to find out afterwards from a foundation as this. This is so sick to me.

I wish you well, Toodles.

February 19, 2010 - 8:51pm

Response to Anonymous:
Perhaps you should get educated and become alot less offensive and caustic, to say the least.
Prolapse is a complication that CAN occur but did not occur in my case. I never told "other women" to get it done. My remark "Get it done" meant explore your alternatives, surgery can be successful and not all terrible as "some" people would have one think. Get educated dear -closed minds solve nothing.

February 19, 2010 - 2:02pm
EmpowHER Guest
Anonymous

Toodles, telling other women to "get it done" when you have no idea what their symptoms are or what the alternatives are to their condition is at the very least reckless. If a man tried to tell other men that sex was better after his penis was shortened, his prostate was amputated and he was castrated, he would be a laughing stock, but that is exactly what you are trying to tell other women. When a woman wants a sex change, they remove her uterus and ovaries. Guess why? It de-sexes her. Sadly, you have been duped into this barbaric surgery just like millions of other women. Get educated.

February 19, 2010 - 1:54pm
EmpowHER Guest
Anonymous

Did you have prolapse repair done during your hysterectomy? How long ago was your surgery?
Kiwi

February 19, 2010 - 1:38pm
EmpowHER Guest
Anonymous

To Toodles, You said that your husband believes that you became even more sexually active after the uterus amputation. You haven’t said how YOUR sex life is. I don’t care if you have become more active is what I would like to know, if it is still as much fun? The same sexual energy you once had? Do you have any pain during sex? Do you have any incontinence from your surgery? Do you have any prolapse since your surgery or did the doctor repair that during your hysterectomy? Any bladder pain or back pain from sex or the day after?
Kiwi

February 19, 2010 - 12:11pm
Image CAPTCHA
Enter the characters shown in the image.
By submitting this form, you agree to EmpowHER's terms of service and privacy policy
Add a Comment

All user-generated information on this site is the opinion of its author only and is not a substitute for medical advice or treatment for any medical conditions. Members and guests are responsible for their own posts and the potential consequences of those posts detailed in our Terms of Service.

Uterine Fibroids

Get Email Updates

Uterine Fibroids Guide

HERWriter Guide

Have a question? We're here to help. Ask the Community.

ASK

Health Newsletter

Receive the latest and greatest in women's health and wellness from EmpowHER - for free!