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Due to have a hysterectomy but am scared to death after viewing a video about side effects!

By April 5, 2009 - 4:04pm
 
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I have generally accepted my doctor's recommendation that I have a hysterectomy due to a very large uterine fibroid (15 cm) that is displacing my bladder. I also have cysts on my one remaining ovary so that's supposed to come out too. But after viewing a video link from your website, I don't know what to do. It was reported that 80% of women experience serious quality of life issues afterwards. I don't like those odds! Are there women out there who don't have serious problems after a hysterectomy? The link I viewed was from a Share story called Female Anatomy: http://hersfoundation.org/anatomy/index.html. I also have a history of breast cancer.

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To Anonymous Posted on Nov. 28th:

My "Amen"s to you, my 'Dearest'. You stated something so hideous - "I too, am one of the 'millions' plus women who have LOST THEIR LIFE because of trust I put in my doctor..." What a sad, sad statement.

Has anyone seen the fact based movie entitled, "The Changeling"? It may seem I am off on a tangent with this, but think about it - those who have seen the movie/know the story of a woman fighting with the L.A. police and law back in 1928; this due to she having a young son gone missing, and the police deliver to her another child after 5 months. She claims the child is not her son. She fights and even is passed off that it is in 'HER MIND', and that something is just wrong with her. It is a must see movie. My point being is that women are still "Passed Off" with and after Hysterectomies - because they are 'WOMEN'. It is certainly not the problem lying with a doctor. It is the woman who is wrong, and with this woman; it was back in 1928. Has that much changed with a woman?

Of course - there are several points here: One - Women are still treated as emotional and frail and not knowing creatures. They are passed off still in the medical world, and with their 'female parts' being on the 'inside' and unseen; what is not seen on the outside - must not be. As I have said in my comments previously whether here or on other sites; men have their sexual 'tools' on the outside, and 'heaven forbid' a man having his balls cut off, and his penis cut in off. This is my personal view in comparison to a Hysterectomy for a female, but feel I am 'right on'. A woman has her uterus removed (the penis), and her ovaries taken out (the 'balls'). What person would think a man could function/survive, be just 'fine' and okay with these gone? Tell me what the difference is, basically, when in comparison between a man and a woman? Oh, a man can still pee and do other bodily functions, but how would this man feel? Would this man ever feel the same again? Would people feel compassion for a man losing these? Would doctors do everything in their power to make sure every other measure was taken; i.e., alternative surgeries/procedures or methods to SAVE a man's penis and 'balls'? Why should this be any different for women? Now, let us mention the PHYSICAL of this - the whole body being physically disrupted with the 'insides' of women. This is worse than a man losing his penis and 'balls'. There is more damage done to the insides with nerves, tendons, and ligaments cut and torn. There is more prolapse with the insides with other organs. There is more loss with hormones, testaterones, etc., and the female 'insides' are much more complex, and the man may lose his penis, etc., but the woman loses so much more; including her sexual drive and whole being. Oh, yes the man loses his 'tool', but not his drive to the degree a woman does. The fatigue is over-whelming at times. A man does not lose this: as his insides have not been 'drained' and cut out, and ... butchered. Butchered is too polite of word, in fact. A dead animal gets butchered. Women are left alive...

I was a strong, vibrant, and hard working female before my Hyst., and nothing, I thought, could keep me 'down'. I was wrong. I curse the doctor who did this to me every single day. Just when I bend over to do something; my back hurts. I have horrible fatigue. I have not made love with my husband for almost a year. I say this also... I was known as a 'sex kitten' prior to my Hyst., and my husband surely has suffered; as he misses that 'kitten' who promoted the love making at least twice a week (honestly), and with the great lingerie on and fish nets, and I put that on because I wanted to... (By the way, we had been married for 22 years when I had my Hyst., so there was no question on our marriage.) I ache for him; as he has suffered for what this doctor did to him by doing this to me. So, it is not just the woman who suffers. Plus, with women who have children, like me - the children suffer also. I have not been there for my children, since the Hyst., and they do not understand why I have changed so dramatically. This could be, as a mother, the sickest thing the doctor did - period... (I am crying right now...) How do we get across to these doctors and everyone else that this is inhumane, and it has to stop!!! I just hope that there is hope for me and all of you out there who suffer as I, but as I have said before; Heaven forbid this continues in the generation of my daughter and grand-daughter(s). CEASE this, doctors, NOW!!! Laws need to be passed also. It has to be a well written "Informed Consent" form, and has to be notarized by someone, and has to be signed by three other people chosen by the woman; so all have been made aware of the consent being signed; but also in the document signed - that the woman has been given and written on this - all other alternatives available, and also that NO SURGERY MAY BE REQUIRED. That was my case, at least, with two small fibroids in my uterus - just causing heavy bleeding. I got suckered into having a Hyst. due to the doctor scaring me by saying I was "losing so much blood every period for the last four months; you cannot afford to have even one more period". Little did I know - I could have done nothing, and taken care of this with a regime of iron and other vitamin supplements. Plus, I could have been made aware that by doing nothing, my fibroids would very well shrink and all this go away in just a matter of 'time', and not that long - since I was 48 at the time. Not that doctors can predict when a female goes through her menopause, but I would have much rather have gone through that; rather than the 'Hell' I live with now, and my husband's pain, and also my children. To me, this is an "Informed Consent". How dare doctors do this and get away with this.

I wish I could win a Lottery. I would put (honestly) so much of the winnings into fighting for this "Informed Consent", plus other matters involved with this, and... get the word out in written form to help women who have gone through this to give to their loved ones - so they can convince their 'significant other', family, and friends that they are not alone and this is real and physical and very emotional, and they have been 'wronged', and to not give up on them; just do not give into and help what is happening with women now, and has been for way too long - to the tune of millions and millions of women everywhere with greedy, power happy, and uncaring doctors, hospitals, etc., etc.. I would love to put my doctor in my body for one day - just one day. Of course, he is a male - so he still would have no idea of what we women truly have suffered with after a Hysterectomy, but also would love to have him respond to what he feels like after he has his penis cut down, and his 'balls' removed. I would ask him, after he dealt with this for about two years; come to him, and ask him how it's going. I just do wonder what he would say.

All of you out there - take care - I am so sorry for anyone else suffering - please share any helpful ideas/any thoughts on this.

See Dandy

XOX!!!

November 29, 2009 - 11:13pm
EmpowHER Guest
Anonymous

Amen to SeeDandy1!!! I too, am one of the million plus woman who have lost their life because of a trust I put in my Doctor (a.k.a. Butcher). Bless your heart for telling it EXACTLY like it is!! :(

November 28, 2009 - 1:39am
EmpowHER Guest
Anonymous

My name is Jennifer and I live in Maryland. We will be meeting with a gynecological oncologist at Sanai hospital in Baltimore. My husband, mother and husband's family are all here as well as friends. There are many unknowns right now until we meet with the oncologist on Wednesday.

October 9, 2009 - 2:16pm
(reply to Anonymous)

Hello Jennifer,

It sounds as if you are getting into the 'thick of it' to find out what is wrong with you, and also be advised of what to do with whatever problems you are realizing. Could you expand on what your problems are, and what you have been told, thus far? It is great when you say "we will be meeting"; which I am taking as your husband, and perhaps more of family will join you when you meet with this doctor. I guarantee you will be listening, but be in a different 'zone', and good to have loved ones there to take 'good notes'
along with you. This is so important. This leaves open, with anyone else there, to ask questions you may have not thought of or forget to ask - been there, done that. Also, it is a good 'Witness protection protection program; if you will...

I may sound 'one sided', but I am not. I made the most serious mistake with having a Hysterectomy, and how sad it was; that I was 'pushed' into having one. There are too many alternatives out there, and for anything wrong with a female - there is always another way to save our such 'VITAL ORGANS'. I wish I would have heard from someone as myself to 'save me' from this mutilization. I am giving you a gift here, and I pray you heed my statements and comments. Everyone, I mean...

Bless you for forging on with your trials - with whatever they may be. Just remember also; this Hysterectomy 'Business' is a money making opportunity for doctors, and some do not know how to perform the less expensive; yet more complex alternative operations to save the uterus and ovaries; i.e., Myectomy, etc., and they do not make the money as can be had with a Hysterectomy, and full, blown out one with convincing a woman she needs to have her intact and healthy ovaries removed too.
This happened with me. A doctor tried to convince me I did not need my HEALTHY Ovaries, and tried to take those while he was performing the Hyst. on me - which I did not have to have either. My point being (again) there are alternatives, and my doctor led me to believe there were not. It sickens me to no end that I was mutilated for no reason for two fibroids, and this doctor wanting to take my ovaries also. Thank goodness a close friend of mine told me to stop, and not let him take my ovaries. Oh, and by the way, he also wanted to take my appendix out while in there. "Cha Ching, Cha Ching, Cha Ching"
went his pockets; as he was trying to rack up all he could with me for profit. I cannot believe we put faith into doctors as this, and they are everywhere. Women get the brunt of a doctor's 'greediness', due to this being a mockery of a necessary operation. This has to STOP! This has to stop NOW!

Mark my words - people will look back on this, and the overall will be viewed as insane; doctors were able to get away with this for so long. I hope my daughter will see this, and not later with my granddaughter. The sooner the better - this stops! If it takes until my great-granddaughter; then this is more than insane. It is a Holocaust carried on way too long against women...

I vented, yes. I just hate to see one more woman be blinded and lose what is (as they say in Greek - her 'Caffie' (Spelling- excuse me...), but that is just one thing/area lost and taken away (oh, the physical is hideous, and just loss of sexual drive is cruel. Ask my husband. He can vouch for having a 'sex kitten' before, and now... (Gosh, how this hurts me; because, it hurts him too.)

I wish all the Best!

See Dandy

October 9, 2009 - 8:03pm
EmpowHER Guest
Anonymous

Cancer cells were found in one of the ovaries which was removed during the hysterectomy. Will meet next Wednesday with an oncologist to see what's next.

October 8, 2009 - 6:50pm
(reply to Anonymous)

Anon, I'm so sorry to hear this. I'm sure that you are somewhat scared and looking for information. Please let us know what you learn and do not hesitate to ask us to research something for you. You can also click on "Send Me A Message" by my picture and stay private if you prefer.

October 9, 2009 - 9:55am
EmpowHER Guest
Anonymous

Just curious to know what you ultimately decided about your surgery. I am 38 yr old, no kids and just had my hysterectomy this past Thursday. I have suffered from endometriosis for well over ten years, which went untreated until 2005. We tried Lupron treatment to no avail, I developed progressively worsening cysts, fibroids and the endo got worse. I ASKED for the surgery to get some relief and am praying that I won't encounter all these horror stories I am reading here. If I do, I will have to accept that an move forward. The pain the endo caused was not worth holding on to the organs. Just curious on what other endo sufferers have done.

October 6, 2009 - 10:40am
(reply to Anonymous)

Hi. Hope you're doing well after your surgery. Please keep in contact with me and let me know your progress over the next few months because I haven't had any surgery. I've put off my decision because I don't have to make one yet. Have had to take care of complications from breast cancer first. But I will not have a hysterectomy if it's not required. It would be very helpful to me if I could hear firsthand whether or not you're experiencing any bad side effects. Wishing you the best during your recovery.

Terri

October 6, 2009 - 8:43pm
(reply to Terri)

Dear Terri,

I am sorry you are dealing with complications after breast cancer. I was happy to hear you have not had a Hyst. either. My dear sister had breast cancer about five years ago. She is doing pretty well now, and I feel she went with a very good doctor and hospital staff - who have taken care of her very well. As for you, with the before, the breast cancer; I can only talk about any experiences with seeing and talking with my sister. I hope things fare well for you, as time progresses. My heart goes out to you, and know any woman has to have 'stamina' to conquer breast cancer, alone.

As far as a Hyst.; however, I can speak 'first hand' about this, as I had one. It was the worst mistake of my life. And with so many millions of other women out there who can claim the same - why go there? There is no going back well, just like having a breast/breasts removed; except, there are advantages with being able to have implants, and even right down to have available ways to avoid anyone knowing. My sister has been grateful for this.

The breasts are a part of a woman's physique, nurturing our babies, and enhancement to a male with love making. It can certainly make a woman feel 'less of a woman' by missing one or both; yet, not something which can be 'fixed' with what available now, with speaking of how 'things look' and a woman
can 'replace' breasts, in a way, after a surgery. My sister understands this well, and I know 'second hand' about this; so to speak. I am pretty 'savvy' too. My point here is, WITH A HYSTERECTOMY, there is no way to enhance, put back parts, and make a female feel better. This does not happen with a Hyst., and how dare these doctors, as I have said, get away with taking away a woman's precious gold. With breasts, a woman has ways, after a surgery, and augmenting, to help with this so much, but no woman can compensate for having her whole being pulled; her feelings, her sexual drive, her body being completely unbalanced, her insides being torn apart, her overall body feelings being VIOLATED, and almost as if 'raped' in a sense of the word; i.e., Hysterectomy. How dare these doctors getting away with this - WHEN ALTERNATIVES THERE. How dare these doctors, and I mean this so profoundly.

Please never get a Hysterectomy! There are ways to help out your specific situation. You have just
been to the wrong doctors; if they keep spilling out to you this is the 'route' to go. How dare them!

Terri, if I can save you, by golly, I hope I am right now. DO NOT DO IT! Your body may be one of the lucky few, but are you willing to take that chance when so much other methods are available? Quit that doctor who is telling you that this is the best route. Oh, it gets me going when doctors prevail with pushing a woman into believing this the only way... Shame on them...

With heart and soul,

See Dandy

October 6, 2009 - 11:34pm
EmpowHER Guest
Anonymous

Just curious to know what you ultimately decided about your surgery. I am 38 yr old, no kids and just had my hysterectomy this past Thursday. I have suffered from endometriosis for well over ten years, which went untreated until 2005. We tried Lupron treatment to no avail, I developed progressively worsening cysts, fibroids and the endo got worse. I ASKED for the surgery to get some relief and am praying that I won't encounter all these horror stories I am reading here. If I do, I will have to accept that an move forward. The pain the endo caused was not worth holding on to the organs. Just curious on what other endo sufferers have done.

October 6, 2009 - 10:39am
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