Has anyone had a failed robotic pyeloplasty?

My daughter is 8 and has had two failed surgeries. The last renal scan showed her left kidney was draining at 116 minutes and counting. I'm seeking a second opinion as well. She cant even play outside due to pain and NO pain control. They refuse any sort of medication for pain. I'm am heartbroken because she has begged me to just have it taken out. I'm interested in your outcomes. Please contact me at [email protected]. I could use any helpful information. I'll be praying for you all!

Had UPJ Davinci repair June 15th as out patient. By 10 pm that night was in horrific pain. Called the rescue squad to take me back to hospital. Dr felt stent was causing pain so it was removed. Stayed in hospital for 5 days, then discharged home. I was feeling good for 3 days. Then pain started again gradual at first then becoming unbearable. Went to dr office twice and multiple phone calls complaining of pain. Was told they didn't understand why I was in pain and that they couldn't give me any more pain medications. By July 4th pain was so bad I could hardly walk and was unable to stand up without help and yelling out in pain. I returned to ER. They gave me lots of pain meds but nothing helped. Ended up having an ultrasound that showed a huge area in my belly. Was transferred to larger hospital. CT showed that I was full of urine leaking from the repair site. Two abdominal drains placed on July 5th. While in hospital had an allergic reaction to medications and ended up with head to toe hives. Also with all the extra fluid in my body I went into a-fib and attack acardia. Was able to drain 3000cc plus out of my belly. Had nephrostomy placed July 6th. Was discharged from hospital with drains and tube on July 8th. In total 20lbs of fluid was drained off in 4 days. Waiting on follow up appointment this wed with new dr to see how my healing is going. I am miserable. I am 36 and a mother of a two year old. I lost my job, and now insurance. I haven't Ben able to do much with my son and pretty depressed with the whole situation. I keep praying for strength. Was wondering if anyone else has gone through this, and if there is light at the end of the tunnel.

Hi, question to the initial poster because I am in the same boat.
Did you have a second pyeloplasty? how did it go? was it successful? was it robotic or open?

Thanks.

I have to tell you your additude is commendable after going thru so much. I came across this discussion trying to figure out what the possible next step will be for my six year old son after a failed robotic pyeloplasty. Everything I read focuses on how sucessful they are but yet here we are; the few that weren't so lucky. This is the hardest thing I've emotionally been thru. As a parent I want my child to trust I am protecting him and yet we too are at the mercy of a dr that treats him like a guinea pig. The dr says things like this never happens your son is 1 in a million. Gee thanks!!!! I have done a lot of research and have found a different dr that we will be going to in two weeks to decide what steps are next. So my advise to you would be if you don't feel confidant in your dr it doesn't hurt to get a second opinion. I am tired of feeling at the mercy of a dr that doesn't give us answers we deserve.