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Had a robotic pyeloplasty to repair upj obstruction/narrowing about 6 months ago. Testing revealed no improvement in kidney function after surgery. My doctor then did laser surgery to remove possible scar tissue he thought had formed due to my previous surgery. That did not help either. I just found out I have nephroptosis (my kindey drops into my pelvic region while standing). I believe my renal function is 66/34. I am getting repeat testing in about 3 months. I have discomfort off/on daily but it is tolerable. I dread more surgery. Has anyone had a failed robotic pyeloplasty? My nephroptosis didn't come about until after my second surgery. Is that coincidense or could it have been a result of surgery?
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I have had the same problem. Failed robotic PUJ. stent inserted waited, took it out pain again, 2 stents back in. Stents out no problem for over a year. Now im sat in hospital in the middle east after having a REDO PUJ via open surgery. Another stent in for a few months. I can only wait now until that comes out to see if its worked. I am a 28 year old Male.
January 30, 2013 - 2:59amThis Comment
I had a Pyeloplasty performed in July. Was not successful. He had to do a uteroscopy last week to remove scar tissue and I had to get another stent for 4 weeks this time. He said my problems will be ongoing due to the damage of my kidney. It has been stretched to the point it can't push the fluid up and out of the uterers. He wants to keep getting scans and if the function falls below 20% they are going to remove it.
December 28, 2012 - 8:15pmThis Comment
I can understand your dread in more surgery, especially if you do not know if it is going to be successful or not.
I have been researching this question for you, and am honestly running into more questions than answers. I am forwarding your question to one of our medical advisory board members, in hopes to receive more information or some answers to your questions.
Do you have any additional information that you could share, including any recommendations your doctor(s) have made?
In the meantime, I have discovered that different hospitals promote various "standards of success" in regards to failure rates vs. success rates for surgical procedures. In fact, one hospital define success of a similar procedure as yours as, "...improvement in pain plus preservation of function...". Do you know what your surgeon and/or hospital describes as a "successful procedure" for "robotic pyeloplasty to repair upj obstruction"?
February 1, 2011 - 2:12pmThis Comment
My doctor was planning on seeing faster drainage. He did not seem pleased after reviewing my latest IVP. He also mentioned if he would do surgery it would have to be an open pyeloplasty vs. robotic due to scar tissue. I wonder if he meant the scar tissue where the ports/camera go in or at my kidney. He made it sound like surgery was just a matter of time, that we would just keep on top of it. I believe i'm his first patient with nephroptosis. I feel like a guinea pig. I also have a significant health history of surgically corrected spontaneous pneumothorax on both lungs, mild mitral valve prolapse and TMJ. I am trying to fit the pieces together and wonder if i may have some type of connective tissue disorder. I am so medically complicated but greatful to be alive and know that there is always someone out there that has it worse.
February 1, 2011 - 3:48pmThis Comment