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Hello I am new to this site and I have been dealing with this monster conversion disorder now going on six years it has taking over my life I am wanting to know if there is a center that can help me conquer this illness I live in Nashville tenn thank you

By August 24, 2010 - 6:07pm
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When this first happened I was ammitted in the hospital doctors thought I had a stroke I was in icc unit and then I was moved to stress mood unit and from then on I was told that I was dealing with conversion disorder. That it would be long term recovery. My family said that I had regressed back to a little girl didn't know my husband or my children they did say that I knew my dad. I was mute for about seven months you could not understand nothing I was saying it was all jebrish. Slowly my speech came back And I was so happy but then people started asking me where I was from I thought it was because of the way I dressed. Because I love to be fashionable. I didn't think to much a out it until everyone would ask the same thing I could not hear for a long time that I no longer had my southern country girl accent. I have been told I sound sweddish, Europian, Russian I have never been out of the country so not only do I suffer with this illness I have also lost my idenity. I can go from looking and acting normal to like a lady with ms or something I suffer with seizures and I throw up awful headache lots of pressure like a vice squeezing my head. Have trouble walking body jumping and jerking I never know what kind of day I am going to have. I do have a doctor on my side that gives me strength and faith to keep fighting this fight and I know he has all the answers and he will never leave me And that's why I fight this monster. I try really hard to live a normal life but what is normal is there such a thing anymore. I am forty two years old mother of two and nana of five I am a loving fun outgoing person that loves the lord through all this I am still able to sing southern gospel music I would be so lost if I couldn't sing that's how I get my feelings out and sing praise to my lord. Please if there is someone that can help me please get back with me. Please thank you and god bless you all !!!! I can not imagine going through all this alone without having Jesus and knowing him as my personal savior .

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EmpowHER Guest

try eating healthy a balanced diet might help support your body to cleanse it of toxins if there is a channel maybe of the nervous system thats blocked and needs releasing? Unsure but you could give it a go. God Bless You.

July 10, 2014 - 9:41am
EmpowHER Guest

I am just trying to find people from anywhere in the united states that are dealing with this Conversion Disorder, and/or psychogenic nonepileptic seizures, like I have. If you are looking for someone to talk to, I would love to talk to you. I just want to know that I am not alone in this, and that there are other people going through the same thing, and they are making it through. My big problem is that my independence has been taken away because They said no more driving until I am seizure free for 3 months straight. I am 22 years old, I was diagnosed when I was 19.... This disorder has ruined a lot of things in my life, destoryed friendships, and relationships. Things just aren't the same as before I started having these seizures. I still live at home with my mom and my little 17 year old brothers. So I have no private time, I cannot be left alone at home because I might fall and hit my head and pass out. I have been fighting for Social Security since I was 16 because not only do I have this, but I also have TONS of other medical conditions, problems and diseases. A


November 10, 2012 - 2:49pm
EmpowHER Guest

I can relate to the posting about conversion disorder. I have suffered with this monster, as Doriann described, for about 12 years. I have seizures and back pain. I did find out that my back pain wasn't conversion related, I had 10 bulging discs. This probably occured from all the falls from passing out that I have had. I have broken an elbow and ribs from falls. I took epilepsy meds for years then went to MCG to the epilepsy monitoring unit and they diagnosed me with conversion disorder. I went to an inpatient mental health facility and the physciatrist there did not think it was conversion disorder, just depression. I then went to the Mayo clinic in Jacksonville, Fl. of course all their tests were normal but they suggested the epilepsy monitoring again. I didn't do it. That has been 3 years ago and it gets worse every day. I am now going to try MUSC in Charleston, SC on July 25th to have the epilepsy monitor again. I hate to keep going to Dr.'s because it is so disappointing to get the same diagnosis. I feel that people think I am "faking it". I have always been a very confidentent woman until the last few years. I have went from 120 lbs. to 180 lbs. I feel so fat and ugly I don't want to go out anywhere. I feel something is really wrong. In Jan 2005 my son found me semi-unconcious, took me to the ER. I was admitted, CT & MRI scans showed that the white matter of my brain was globally affected. I lost all motor & speech skills, stayed in the hospital for 45 days, then transferred to a nursing home for 6 months where everything miracously returned. Dr's. had no explanantion. If I get any good news at MUSC, I will let you guys know. Take care everyone.

July 13, 2011 - 2:04pm
EmpowHER Guest

I have not been on this site for awhile but received a email today so I am just now answering. My conversion does not seem as severe. When I get agitated my left side gets numb...not where I can't feel...maybe asleep. I have been through neurogical testing ...every test was negative. I am currently going to a counselor who also does hypnosis. I cannot seem to be hypnotised but my counselor things something occured as a child....My symptoms appeared after I retired and my life had slowed down...I was aslo so busy I didn't have time to think about my emotions. As I stated, I haven't been able to cry in many years. Since I was a child I have always pushed my feelings back. I have always been
so strong and now it has backfired..with all those hidden feelings.
Some days, I do real good and the next something will trigger my
mind to react to my body. Someday, I will get through the block
and find out the what started all of this. Nan

January 19, 2011 - 7:52pm
EmpowHER Guest

Hi ive had conversion disorder ten tears, i had thought it was a stoke also - its been hell, it destroyed my life and ive lost my youth turned into a loner, i know what your going through i dont believe anyone can insight into this horrible thing unless they have it. im male and got it at 23 im now 34 and not much better, i have had a permanent chronic headache cant swallow my spine also feels to have dislodged my thorax shifted to one side cant breathe a deep breath, my eyes are strained and ache my head tilted to the side scoliosis, its a disgusting illness, ive researched and researched but im hopeful now ive found Dr John Sarno, ive ordered some of his books he claims he can completely cure psychosomatic illness he wrote a book called the divided mind and has a program that people follow to improve. nothing has worked on me so will give this Dr a go I recomend you guys check him out and give it a chance. Best of luck and hope you get cured!!!

January 19, 2011 - 3:47pm
(reply to Anonymous)

Your sounds much worse than mine. It basically just wears me out. When I get the least upset it gets worse, especiallly in the morning, my body is so heavy, alsmost like a sleeping pill which I dont take. I also have a balance problem. I do belong to a mediation group whihc makes me feel better afterwards and I have a counselor who has tried to help me with hypnosis which I haven't been able to do but she has good suggestions. Peaceful music
with ear phones helps, especially Inidan spirtural music.I will check out dR. Sarno. May you have a day of sunshine!

February 18, 2011 - 8:29pm
Expert HERWriter Guide Blogger (reply to Anonymous)

Thanks for writing and sharing your story. It looks like it's hard for people with conversion disorder to meet others and share information, and it's nice to have you with us.

January 19, 2011 - 6:36pm
EmpowHER Guest

I was so happy to find your letter. I too,have conversion disorder
and it has gotten worse the last 6 month. Though, I have been
to counseling and to a neurologist, it has not helped. My worse
time is morning when I wake up, my entire body is weighed down,
especially my left side starting from my head to my feet. I haven't been able to cry for about 8 years. Today, I was on the phone trying to find a specialist in conversion disorder within driving
distance from home which would be Portland Oregon and Olympia Wa. Nancy

October 4, 2010 - 7:08pm
(reply to Anonymous)

Hello Nacy. This is Doris. I am sorry that you are going through this too. But on the other hand I am glad you foundt my post. This condition is very real very disturbing with not a lot of help from doctors I have seen through all these yrs. Right now as I am typing to you I have had a set back not able to walk and my speech is not good this happen weds morning and it is now Monday. My spine feels like it is breaking into. Thank you and god bless.
(Personal contact information removed by EmpowHER Moderator per site terms. Members are encouraged to use the free site email service to connect with each other.)

November 22, 2010 - 9:34am
Expert HERWriter Guide Blogger (reply to Anonymous)

Welcome to EmpowHER Nancy and thanks for your comments. Have you been able to find a doctor? Pat

October 5, 2010 - 5:03pm
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