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I suferring from AIHA from last ten years...currenty on 5mg alternate day predisolne and 5 mg daily folic acid.
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What types of hemolytic anemias are treated with iron and folic acid supplements other than pnh?August 30, 2010 - 10:36am
i also think you should se an acupuncturist and start doing something natural. it is very bad to be on prednizone over four years as your organs cannot tolerate that level of meds. fight to get this out of your body, do not let doctors fill you up with steroids if at all possible. I wish you the best in your recovery and i don't mean to scare you - i cannot say enough good for alternative therapies and clean life-style. my mother chain-smoked and they said that was a death sentence for any blood disease so hopefully you don't - my best to you -April 25, 2010 - 4:40pm
whatever you do, do not smoke. i lost my 58 year old mother to this disease. Iron rich foods. exercise. lot of water. blood purifiers that are natural like garlic. meditate and do yoga. this took my mother away from me in 11 days after she was told she was severely anemic six months before.April 25, 2010 - 4:34pm
Has your doctor talked about the B-vitamins, and whether they are important for you?
And did your doctor recommend an iron-rich diet? An iron-rich diet often will help. Some good sources of iron-rich foods:
meats - beef, pork, lamb, liver, and other organ meats
poultry - chicken, duck, turkey, liver (especially dark meat)
fish - shellfish, including clams, mussels, and oysters, sardines, anchovies
leafy greens of the cabbage family, such as broccoli, kale, turnip greens, and collards
legumes, such as lima beans and green peas; dry beans and peas, such as pinto beans, black-eyed peas, and canned baked beans
yeast leavened whole-wheat bread and rolls
iron-enriched white bread, pasta, rice, and cereals
Does that help?February 1, 2010 - 10:53am
I have a few follow-up questions for you:
1. I want to make sure that you have idiopathic autoimmune hemolytic anemia ("idiopathic" meaning the cause is unknown?)
2. Is your current treatment of steroids (prednisone) showing improvement in this condition? (Meaning, is your condition being properly treated?)
In other forms of hemolytic anemia, it is recommended that the individual be treated with folic acid and/or iron supplements (along with steroids and other treatments). However, in Idiopathic Autoimmune Hemolytic Anemia (IAHA), this does not seem to be a suggested treatment, as typically, when we hear about someone being "anemic", than the response is to have that person be treated nutritionally with increase in iron and/or B12. However, your anemia is a chronic autoimmune disorder, and is caused by your body prematurely destroying red blood cells (not from a lack of nutrients in your diet). The answer to your question "what to eat" really depends on what your current blood tests reveal, if your body is able to regenerate red blood cells effectively, and if your condition is being well-controlled with your current steroid treatment, and if you have any additional medical/health conditions.
Since you have had this condition for ten years, what information have you gathered from your health care providers? Have your doctors suggested that your diet is inadequate, or have they recommended that you speak with a Registered Dietitian?
Unfortunately, there is still much that is unknown about autoimmune disorders, and there are no foods generally recommended to eat more of, or any supplements that have been proven successful for your condition. Are you aware of the numerous national health organizations, specializing in your condition (as well as autoimmune conditions, in general)? Here are some resources for you:
- American Autoimmune Related Disorders Association (AARDA): Autoimmune Hemolytic Anemia
Lastly, if your doctor did suggest that consuming more folic acid or iron is essential for your specific condition(s), we can provide a list of foods that are good sources of these nutrients.December 22, 2009 - 2:31pm
yes the cause is unknown and its cold reactive...my condition is stable on steriods as i am taking treatment from last 10 years.plz provide me with the list of items which would more help ful in maintaining my hemoglobin level.December 25, 2009 - 2:41am
I wanted to follow-up with you, and see how you are doing.
Did you need any additional information (I am not sure if the list you were referring to was for us to send you specific foods that are high in folic acid/folate and iron)?January 17, 2010 - 9:24pm