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tell me about treating cidp

By Anonymous February 25, 2009 - 3:06pm
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now on predisone, they want to do igiv . need more information

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EmpowHER Guest

How did you heal yourself? I have it and read book already. Thanks

May 7, 2012 - 6:36am
EmpowHER Guest

I like http://www.cidpusa.org i got enough knowledge to heal myself .
Simple diet described on the diet section and a simple book to read.
One can recover from every disease. Thanks to this page.

October 29, 2011 - 6:23am
EmpowHER Guest

I would recommend the treatment from cidpusa.org they offer alternative treatment and you do not have to expose your body to IVIg side effects, no predinisone . Its just two weeks treatment and you improve. Alternate way is to read the Flame within the book from cidpusa.org

January 5, 2011 - 6:34am
EmpowHER Guest

The best treatment and guide is from cidpusa. org their book is the flame within with alternatives to reverse and prevent every disease
why take IVIg why not inexpensive herbal alternatives

January 2, 2011 - 8:46am

CIDP is a autoimmune disease, reviewing the data from cidpusa.org they have treated several patients with antibiotics and completely reversed their disease.
There is a book available called "the Flame within a guide to autoimmune diseases" This gives the protocol of the antibiotic therapy.

The book is available from cidpusa.org. and contains the treatment of all autoimmune conditions.

May 16, 2010 - 10:54am

Anon, I'm sorry you're dealing with CIDP. When were you diagnosed? Were you diagnosed after a viral infection or a vaccination? And how long have you been on the progesterone? Has it helped your symptoms?

What happens in CIDP is that your immune system has started attacking the myelin covering of your peripheral nerves. Myelin is a covering that protects the nerves. Without it, those nerves don't react properly to such things as numbness, pain, tingling and fatigue. It progresses slowly and causes increasing difficulty with motor skills and a loss of sensation in the arms and legs.

Cortosteroids like prednisone are used to help the symptoms and ease the inflammation; has it had this effect with you? Often, IVIg therapy is used when that treatment has become inadequate or is not helping.

IVIg stands for intravenous immunoglobulins. This therapy has been used for two decades and it has successfully helped prevent relapses in CIDP patients. IVIg contains antibodies purified from the blood plasma of thousands of healthy blood donors, and it helps the body respond to the inflammation caused by CIDP. It can have side effects: allergic reactions, headaches, fatigue and a risk of infection. Here's a page specifically about the treatment:


It may help you to know that in a study that was published as recently as last year in a neurology journal called Lancet Neurology, IVIg was shown to reduce the levels of disability in patients and to significantly improve their grip strength.

Here's more information about that:

Here's the home page of a website that is just for people who have CIDP or Guillain-Barre syndrome, which is somewhat similar.


They also have a forum where people with CIDP can connect with one another:


And here's the website of the Neurology Muscular Dystrophy and Neuropathy Institute, which has a very good explanation of CIDP and its causes, symptoms and treatments:


I also found that people with CIDP can benefit from exercise and massage therapy; is this the case with you? What is the level of your disability right now?

Does this help at all? Do you have special concerns about the IVIg treatment?

February 26, 2009 - 10:06am

Can you tell us more about your condition and why you're questioning prednisone over another treatment?

For information on CIDP:
Chronic inflammatory demyelinating polyneuropathy
On CIDP by the National Institute of Neurological Disorders and Stroke

February 25, 2009 - 8:49pm
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