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my rhuematologist told me about a year ago that I may have lupus, but he said right now we'll just worry about the arthritis side of it. I have terrible muscle cramps all over my body, in my back like when I'm driving or laying flat. my arms and my hands cramp and draw up and especially excrutiating cramps in my legs at night, I don't even have to move, I start to feel my muscles quiver, you can even see it doing it then it starts to cramp and just won't let go, sometimes it is unbearable, are these symptoms of lupus?
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Any soap will work. I used ivory. Put it by your feet under your blankets i also put it under the fitted sheet so it doesnt fall out of the bed.
July 13, 2018 - 8:35amThis Comment
Hello there
I have been suffering with swollen legs, ankles for over 3 years, and all the Dr's keep doing was giving me water pills and told me to watch my intake of salt.
September 28, 2011 - 8:59pmI had gastric bypass 6 years ago and kept my weight off now for 6 yrs, and use to have small ankles, legs after a weight loss of over 130 lbs. and I was feeling great...4 years ago I had both knees replaced at same time, and my knees have been stiff ever since. I started having swollen calves, legs, ankles for the last 3 yrs and frustrated because for the last year I started having major leg, calf charlie horse like cramps that were so severe the pain lasted 30-45 min. of constant pain, crying, and praying for pain to stop. Went to 3 different Dr's and my Dr. from India said lets get some xrays, bloodwork etc to see what is going on...He confirmed a few days ago that I have beginning stages of Lupus, and I am taking medication now for that. The muscle cramps were even going up my leg, groin, and outer thigh and back of shoulders with extreme pain. I also had it where my mouth would burn inside no matter what I ate or drank, and my tongue was rough and red...other Dr's said it was thrush and also a lack of vitamin B-12..this lasted for months....what else can I expect to possibly happen with Lupus? Is any of this an effect of having Lupus?
Has anyone else had any other symptons and if so, what did you do about it? Please let me know your comments.
Thanks
Lidia
This Comment
The burning and redness in your mouth may be Sjogren's Syndrome. Another autoimmune illness that can either be primary or overlaps with other autoimmune illnesses such as lupus.
July 3, 2018 - 9:27pmThis Comment
I have been battling leg cramps for over 6 years. After I had my heart operation - 4-way bypass, they seemed to stop. I thought it was caffeine, and I stopped drinking anything with caffeine. This year has been the worse year ever for leg cramps. I have been to PCP, Vascular doctor who checked my veins and arteries, and they are good. Went to a Hematologist and he found low Vitamin D, and then went to an oncologist who said I could have low protein or cancer of the bone marrow. Then went to a Neurologist who did a MRI, and it showed that I had mild to moderate narrowing of the lumbar spine. I have had cramps last as long as 1/2 hour. They are paralyzing and debilitating. I have been taking Vitamin D and it is helping but not the answer. I cry and have had as many as 6 in a day. I get them in the toes, arches, ankles, calves, thighs, and have had them in my stomach. My enzymes are all good, Metabolism, Potassium, low in salt, etc. I am at a loss. Any suggestions?
November 9, 2017 - 7:14amThis Comment
Hey I was curious. I have yet to be diagnosed with an illness despite the positive ANA and a negative ANA. BUT I had the same tongue symptoms that you describe here! Currently I am dealing with cramps in my arms and legs. Have you found anything that helps??
Thanks!
February 3, 2017 - 10:08amThis Comment
Hello anonymous! I have been living with lupus for over 40 years. I've been through more than I'd like to admit too! I too get the same cramps & Spasims, & have also been diagnosed with lupus type Neuropathy which affects mostly my hands & feet. I highly recommend you get tested for the Neuropathy! Lupus is a crazy disease & can be hard to live with & treat. As for what you can do yourself at home for the spasims is to make sure you drink plenty of water, & get yourself some Tonic Water (not to be confused with sparkling water!) Drink the tonic water throughout the day. A few swallows every hour. Make sure to avoid to much sodium! Get yourself some electrolytes which you can get in liquid form or in frozen pops. Also try to keep your muscles that cramp up warm as cramping happens more often when cold extremities are affected. Also get your vitamin D & B checked by your doctor as well as get your thyroid checked & get a bone density scan. It's also important to eat a very healthy clean diet & to get as much rest as possible as well as trying to keep daily life stress as low as possible! I hope you get the help you need! Be proactive & stay positive! I will keep you in my prayers!! Sincerely, CeCe <<< my nickname!
March 26, 2017 - 1:57amThis Comment
I too have debilitating leg cramps. Most often at night waking me up. When this happens it takes my breath away and I cannot move until the pain starts to wan. My face get flushed and looks like I am wearing a red 1/2 mask around my eyes and across my nose when I get hot or out in the sun. I get extremely short of breath and sweat profusely when I try to do anything. My legs and arms have lost strength and I have recently taken some bad falls. Finally yesterday, I went to a dermatologist who thought I might have Lupus. Had tests run and now waiting for results~
September 16, 2011 - 2:15amJan
This Comment
Hello
I understand what you are going through with the leg cramps, mine also mainly happen at nite. The last episode was so bad, that after the pain subsided, I felt dizzy, light headed, could not breathe, and starting passing out, with tightness in chest and pain. I went to ER and they thought at first that I was having a heart attack, after being in ER for over 3 hrs. they said my body was hyperventilating from the severe pain and I needed to calm down and take deep breaths....after many tests and an emergency bill on my part in the sum of $700.00, I was feeling frustrated, because they did not know why I was having debilitating leg cramps too. We all need to know more about this disease, its symptoms, and treatments etc.
I welcome your comments and reply.
Thankyou
Lidia
September 28, 2011 - 9:05pmThis Comment