I hope that by sharing my story will help others.
About 3 yrs ago I started having this skin disorder that no matter what cream or cleanser I used nothing seemed to help. So I went to a dermatologist. Being very spectical of what was going to happen next I really did not worry. then the dermatologist said we have to do a biospy. And the result came back saying that I have sacardosis. That was it once i got the result I was never going thier again. I was so afraid of what would happen next. So I did not return. After one year of no treatment. My skin was worst. So I had in the back of my mine that the dermatologist was too weird and the treatment plan he gave me just freaked me out. so now I'm at my regular physician and he too one look at my skin and said that I need to see a dermatologist. He gave me a referral and I have been seeing the same dermatologist every since. I think that when I saw the other doctor he gave me the diagonosis that I had never heard of. And the treatment plan was not a match... I was so confused unitl I was sent to my presant dermotologist. She is awesome. She work at a skin lazer center that do a little bit of everything. She has been treating me for over two years now and I'm am so please. this disease can be fatel. I have had a few differant medications for treatment and that includes injections in my nose, eye area, ears,face, and both arms. The treament helped dissolve the lumps that I had in certain areas and the medication makes me really sick. I have a lot of fatigue and pain in my joints. This disease is very serious and If you are not sure about what is going on with your skin. Please get to a doctor and don't just settle for any diagnosis get another opionion. I did and it saved my life. Because this disease was taking over my body. We seem to have gotten it under control but I still have out breaks that are monitored and treated asap. So please see a doctor if you have any concerns about problems you are having eith your body. Remember don't just walk away do something about it.
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Hello and thanks for sharing your story. You said it perfectly -- get a second opinion ... don't just walk away and do something about it. It's the perfect example of advocacy. Please feel free to update this as you learn more about the best treatments for you. Sometimes dealing with conditions can be a work in progress and anything you share can help another woman. Thank you.October 27, 2011 - 4:29pm