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Neurofibromatosis Treatments


Treatments for both types of NF are aimed at controlling symptoms. NF tumors are not always treated because they:

  • Grow slowly
  • Are rarely cancerous
  • May not cause problems

If you have NF, you will need regular exams to check for:

  • Tumors
  • Brown spots on the skin
  • Bones, including scoliosis
  • Hearing
  • Vision

Treatment of NF1

Surgery can help correct some bone abnormalities. Bone surgery may be combined with back braces to treat scoliosis. Surgery can also be used to remove painful or disfiguring tumors. However, tumors may grow back and in larger numbers. In rare cases when tumors become cancerous, treatment may include:

Treatment of NF2

Surgery can remove tumors, but it may damage the nerves. If the nerves to the ears are damaged, hearing loss can occur. Other treatment options include:

  • Partial removal of tumors
  • Radiation

MRI scans of the brain can locate tumors when they are small. This allows treatment to be started early.

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Neurofibromatosis Guide

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