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Schilder's Disease Treatments


There is no known cure for the brain damage of ALD. However, the adrenal deficiency can be treated with cortisone replacement. ALD often causes death within 10 years of the onset of symptoms.

Some therapies can help to manage the symptoms of ALD. There are also some experimental treatments.

Therapies to help manage the symptoms of ALD include:

  • Physical therapy
  • Psychological therapy
  • Special education (for children)

Some treatments you may want to talk to your doctor about include:

  • Bone marrow transplant —this procedure may be most helpful when given early to boys with X-linked child-onset ALD
  • Dietary therapy, which includes consumption of:
    • A very low fat diet
    • Lorenzo’s oil—dietary supplements of glycerol trioleate and glycerol trierucate (oleic and euric acid)
  • Lovastatin —an anti-cholesterol medication

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