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Hi Pat.....bone pain after chemo

By April 22, 2011 - 8:19am

I am on a trial drug and take it once a month 9 consecutive days....18 shots...which I make myself....I should get paid LOL!!....have been doing this for 4 years now....and I am in cytogenic remission thank god....it has been back and forth and up and down....I have had chronic myeloid leukemia for 12 yrs. on May 3, 2011 and so far have been able to stay above and beyond the curve as we say here at Roswell Park Cnacer Instutite in Buffalo, New York....I suffer from bone, muscle and joint pain and yes definitely take medication to help with that otherwise I would have no quality of life and that is what I want most with being a grandmother of 4 boys....3 toddlers and one newborn and I am 65 young and that is the way I want to keep it for as long as I can.....please reply would love to hear your story Pat....you are not ALONE!!!

By Expert HERWriter Guide Blogger April 25, 2011 - 11:49am

Hi Susan - I'm sorry to hear you are dealing with bone pain after chemo. This is, unfortunately, fairly common. You can find more information on what causes this, and what can be done to treat it, from this new interview on Patient Power, a site founded by fellow leukemia survivor Andrew Schorr. http://www.patientpower.info/cancer-pain

There are also resources to assist you through Roswell, the National CML Society and the Leukemia and Lymphoma Society. I would also be happy to help you locate online support groups where you can connect with other CML patients if you send me a private, direct message.

Take care,

April 25, 2011 - 11:49am

Group Leader

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I would like to talk to other women who are having severe bone pain and have to take narcotics. I have a lot of pain in my legs. Is this happening to anyone else? I get my chemo every three weeks and it doesn't go away for the whole three weeks. Every day I am taking these pain meds and I am starting to worry about myself. I really need others input.


millsboro, de


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