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How important has family support been to you, with regard to your CFS?

By HERWriter Guide August 4, 2010 - 1:04pm

Even a few years ago, CFS was misunderstood. Maybe it still is?

People were told to get a good nights sleep, take some vitamins and the symptoms of CFS would all go away. Even worse, some family and friends viewed sufferers as complainers and malingerers.

We now know how real and chronic this condition is and the support of family and friends is crucial.

How is your family support? Was it always strong?

By October 18, 2012 - 2:51pm

I was diagnosed quite a few years ago, probably after giving birth to my son, which is almost 19 yrs ago! It was very difficult to diagnose then, so I did
most of my research, as I had a passion in the field anyway. I didn't really have support from my family and people thought I made up the illness.
I was bed ridden for a few times a year after having my 2nd child, and at the same time was going thru a separation, raising my 2 young children on my own. Stress definitely can make the problem worse. Since that time, I have become a health counselor and have learned so much in the 20 plus years, so I have a passion to helping others with this painful illness.
The more support you have, especially when getting any symptoms, really helps! So, feel free to ask me questions.
I still get symptoms during the change in weather, but not as much
as I did when I was younger! I feel younger now, then I did 20 years ago!

October 18, 2012 - 2:51pm
By October 17, 2012 - 10:43am

Having just recently given a name to an invisible illness that has plagued me for years I have yet to get support, understanding and acceptance from my family. I am hoping though since I have found this site that I can lead them to it and let them read about it for themselves. Hopefully that works.

October 17, 2012 - 10:43am
By September 14, 2012 - 6:58pm

The support I have received from my family has been life saving. I have been fortunate that my family doctor believes this is a real disease, but have times of horrible relapse when only my family can help me.

September 14, 2012 - 6:58pm
By August 5, 2010 - 3:18pm


August 5, 2010 - 3:18pm

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