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Pseudotumor Cerebri / intracranial hypertension Join this Group

Topiramate (Topamax) vs Diamox

By October 25, 2011 - 4:27pm

I am highly allergic to sulfa drugs so can't take the recommended Diamox to lower my pressure so I am on a maxed out dose of topiramate (Topamax), an anti-seizure medication. My pressure actually increased on this medication when I was started on it. Did anyone else have this experience? I now have a VP (Ventricular Peritoneal, brain to stomach, pump is in my stomach where it pumps the fluid off of my brain and puts the excess in the abdominal cavity) Shunt. Plus I have to take Topamax and I have no peripheral vision. Does anyone else out there have any similar experiences?

By December 18, 2011 - 11:27am

Thanks, Susan! I apologize for my delayed response. I was in the hospital, but I'm back now! I'm hoping that others with pseudotumor cerebri or ICH will join in the conversation and start new threads regarding topics that interest them. It is a community and we have to work together to build something wonderful! 

Aliza Chana

December 18, 2011 - 11:27am

Group Leader


For all of those who have pseudotumor cerebri, also known as intracranial hypertension and are treating with medication, shunting, or draining fluid from spinal taps. Pseudotumor cerebri is a condition that mimics the symptoms of a brain tumor and can cause vision loss from the build up of cerebral spinal fluid around the brain and spinal cord without medicating properly, treating with a shunt, or draining the fluid off with spinal taps. Come join this group and discuss the vision loss, headaches, neck pain, and where to find treatments or the treatments you are using!


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