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Follicular Lymphoma - Stories Of Women Who Have Been Affected And How They Coped

By HERWriter
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Follicular Lymphoma

My consultant says I am coping well as I have a strong fit body which has put me in good stead for this treatment. On the 10-14 day after chemo your antibodies will be at their lowest so avoid crowds, as infection, which your body cannot fight, could hospitalise you again. It is very important to have a Positive state of mind and ask for help when needed.” (3)


“I noticed slightly enlarged lymph nodes in my groin area. I had felt them for a couple of years, but they didn’t bother me. In 1990, over the course of a few weeks, the lymph nodes began growing and pressing on nerves in my leg, causing increasing pain. The pain became severe enough that I was admitted to the hospital for pain control and surgery to decompress the injured nerves. That surgery and a second surgery two days later helped my doctors diagnose Stage III follicular non-Hodgkin lymphoma. For the next 15 years, I went in and out of remission, my lymphoma responding to each of eight more courses of various cancer therapies, including immunotherapies received in three different clinical trials. My last treatment was in 2007, and my lymphoma has stayed in complete remission since. During my first remission, without access to the survivorship resources that are available today, my post-treatment anxiety and sadness blindsided me. One-on-one counseling proved to be incredibly helpful for dealing with my uncertainty and stress. There is no single “right” way to do survivorship. Everyone forges and follows his or her own personal journey. To others going through cancer, I recommend you obtain sound knowledge, find and nourish realistic hope, and take effective action”

1.    Follicular Lymphoma. Canadian Cancer Society. http://www.cancer.ca/en/cancer-information/cancer-type/non-hodgkin-lymphoma/non-hodgkin-lymphoma/follicular-lymphoma/?region=onRetrieved 20 February 2019.

2.    Juliana, Follicular Lymphoma Survivor. Lymphoma Research Foundation. https://www.lymphoma.org/storiesofhope/julianasoh/Retrieved 20 February 2019.

3.    Just Diagnosed With Follicular Lymphoma. Cancer Research UK. https://www.cancerresearchuk.org/about-cancer/cancer-chat/thread/just-diagnosed-with-follicular-lymphoma Retrieved 20 February 2019.

4.    Lymphoma Survivor. Patient Resource. https://www.patientresource.com/Lymphoma_Survivor_Story13.aspx  Retrieved 20 February 2019.

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We value and respect our HERWriters' experiences, but everyone is different. Many of our writers are speaking from personal experience, and what's worked for them may not work for you. Their articles are not a substitute for medical advice, although we hope you can gain knowledge from their insight.



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